The Scandal You Probably Haven't Heard About: I... - Thyroid UK

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The Scandal You Probably Haven't Heard About: It's Time To Improve Thyroid Treatment

Kitten1978 profile image
20 Replies

"The Scandal You Probably Haven't Heard About: It's Time To Improve Thyroid Treatment" By Hannah Sole: pajiba.com/think_pieces/the...

Also: hsj.co.uk/policy-and-regula... (full text available for ITT members).

The link to the ITT petition: change.org/p/itt-campaign-g...

We have gathered over 19,000 signatures. We need at least 100,000 of UK-based signatures to make sure this petition is discussed in the Parliament. Please sign and share, if you haven't done it already.

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Kitten1978 profile image
Kitten1978
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20 Replies
shaws profile image
shawsAdministrator

Thanks for posting. Let's hope they reach 100,000.

Kitten1978 profile image
Kitten1978 in reply toshaws

Lets hope WE reach 100,000. It's OUR fight, not somebody elses'...

shaws profile image
shawsAdministrator

It is a brilliant piece of writing and Hannah Sole has to be congratulated in her clear and precise statement.

Kitten1978 profile image
Kitten1978 in reply toshaws

I personally loved her feminist take on the whole issue ;)

shaws profile image
shawsAdministrator in reply toKitten1978

We have to remember the males who struggle as well and I bet they get the same unsympathetic responses.

Kitten1978 profile image
Kitten1978 in reply toshaws

I agree and I have no intention to minimize the difficulties male thyroid patients experience. It's probably even more difficult for them to get diagnosed! Yet, there is a disproportion of females suffering from thyroid disorders while the proportion of males and females among diabetic patients is more or less the same...so why it that diabetic patients get so much better care and endos prefer to specialise in diabeties than thyroid disorders?There is an elephant in the room and we need to talk about it.

shaws profile image
shawsAdministrator

I think it would also be beneficial if it as also reiterated that NDT was already removed and it was the original thyroid replacement NDT which contained all of the hormones and was in use from 1892 up until they stopped prescribing and many have to source their own now.

It was removed due to False Statements made by the BTA and RCoP and despite Dr Lowe's Rebuttal along with two yearly reminders for a response they ignored it altogether. Dr. Lowe was also a scientist and would have made sure his article was precise and he died through an accident.

thyroidscience.com/Criticis...

Kitten1978 profile image
Kitten1978 in reply toshaws

The issue of ndt is also on the ITT menu but, for the time being, T3 withdrawal is simply more urgent.

shaws profile image
shawsAdministrator in reply toKitten1978

Yes - I agree as it is T3 which is being withdrawn at present.

marigold22 profile image
marigold22

That is a fantastic article by Hannah Sole. Can she possibly get it published in as many other publications as possible?

Kitten1978 profile image
Kitten1978 in reply tomarigold22

I don't know. Kitti1 - do you think there is any chance for that? (see marigold's question).

Kitten1978 profile image
Kitten1978 in reply toKitten1978

The ITT petition has reached 19,230 signatures ;)

We need 100K of UK signatures to make sure this petition is discussed in the Parliament.

If every person who signs can get just 2 other people to sign and and keep that pattern going, we will be able to reach 100k.

PLEASE sign and share this petition: change.org/p/itt-campaign-g...

Kitti1 profile image
Kitti1 in reply toKitten1978

marigold22 Kitten1978 I agree that would be great but not sure how we would go about it or where ? Wouldn't most places want to re-write it ? i am send it out to journalists currently thou, newspapers mainly

Kitten1978 profile image
Kitten1978 in reply toKitti1

a re-write would be also good but they would need Hannah's permission to rewrite her article, wouldn't they?

marigold22 profile image
marigold22

Kitten1978 - can contact Hannah Sole and ask her to get this amazing article published in as many places as possible..... Twitter - Hannah Sole@HannahSole.

Kitten1978 profile image
Kitten1978 in reply tomarigold22

marigold22 , I'm not on twitter. You are welcome to contact Hannah and ask her whether she could get the article re-published.

If you have a good idea, just do it, please. We all have our hands full and the best way of getting things done is ...to do you yourself ;)

Phoenix605 profile image
Phoenix605

I thought this was extremely well written as it is a 'dry' subject and even giving the basics of thyroid workings can be confusing to the layman. I only have one criticism and that is the inaccuracy of:

"There are patients who have had their thyroid removed and so cannot convert T4 to T3 themselves".

It needs correcting as it reduces the credibility of the other totally accurate information, you start looking for what else is wrong and the message loses impact. Also anyone who didn't know it was wrong only has to read the comments section to be told and by someone who proceeded to add further inaccuracies.

Kitten1978 profile image
Kitten1978

The ITT petition has reached 19,413 signatures ;)

We need 100K of UK signatures to make sure this petition is discussed in the Parliament.

If every person who signs can get just 2 other people to sign and and keep that pattern going, we will be able to reach 100k.

PLEASE sign and share this petition: change.org/p/itt-campaign-g...

Kitten1978 profile image
Kitten1978 in reply toKitten1978

The ITT petition has reached 19,592 signatures ;)

We need 100K of UK signatures to make sure this petition is discussed in the Parliament.

If every person who signs can get just 2 other people to sign and and keep that pattern going, we will be able to reach 100k.

PLEASE sign and share this petition: change.org/p/itt-campaign-g...

Kitten1978 profile image
Kitten1978 in reply toKitten1978

The Improve Thyroid Treatment petition has reached 21,127 signatures ;)

We need 100K of UK signatures to make sure this petition is discussed in the Parliament.

PLEASE sign and share this petition: change.org/p/itt-campaign-g...

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