I spoke to a guy at the Patients Association this morning. He was very nice and helpful. He suggested I write to my local ccg and cc the email to the PA. helpline@patients-association.com He also suggested that I ask in my email what alternative drugs are available if T3 is withdrawn. (Not including levo as I cannot take it). He said they would have to get a clinical view on this. He also suggested that if there are a lot of complaints re removal of t3 the media may get involved.
So I would encourage everyone to contact the patients association and to also write to their local ccg.
It was easy and quick to get through on the phone to the PA.
If I complete the Petition I don't want my name posted but my comment. It doesn't appear to give me the option as it states (and a box to tick or not):
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