Improve Thyroid Treatment petition. 100,000 of UK signatures needed to STOP THE WITHDRAWAL OF T3.

[Kitten1978]

Some of you have already signed and shared the Improve Thyroid Treatment petition: change.org/p/itt-campaign-g...

Thank you.

However, there are 63,911 members on this forum and yet the petition has been signed by just over 22,000 people.

One would wonder whether we are asking people to sign their souls away! (hence the picture).

There are so many of us here who are begging for help, for advice, for contact details of T3 and ndt suppliers, and spend time moaning and complaining about difficulties with diagnosis, unnaceptably low standards of thyroid treatment and arrogant attitudes of doctors.

I understand that many of us are very unwell. I also understand that many of us have improved, are getting on with their lives and rarely visit this forum. However, I am feeling frustrated by rather poor response from the members of HU community.

We are NOT asking you to sign and share this petition for me, nor for Pamela0106 , UrsaP or Kitti1 . We are NOT asking you to sigh it for any of the ITT members. Most of us are well or are in the process of getting well...that's why we have the energy and motivation to want to change things.

Please sign it FOR YOURSELF, for your relatives with thyroid disorders, for your friends, for other people who are experiencing inadequate thyroid treatment and who WILL experience it for years to come...unless we do something about it.

People who live in Scotland, Northern Ireland and Wales: there is no country in the UK, where the treatment of thyroid disorders would be close to acceptable. If we allow this situation to deteriorate (e.g. T3 withdrawal in England) it will become almost impossible to go back to the previous state (never mind improve it).

iF you've signed the petition or shared it, PLEASE WRITE "SIGNED" OR "SHARED". Thank you!

If you would like to do more, please join us: facebook.com/groups/ITTCamp...

Thank you for taking your time to read this post.

[Pamela0106]

Do it for the future generations.

I don't want Thyroid Disease to become prevalent in British children because parents with the genetics are not treated properly!

This will only change if you speak out.

Now is the time to do it!

If you haven't signed. Please. Do it. I'm begging you all ❤️🦋 x

[Jude54 in reply to Pamela0106]

Signed..

[Kitten1978]

mischa , Quokka , amala57 , Helena877 , smudger1 , Rac73 : BIG THANK YOU for liking this post. If you've signed it or shared it, please write "Signed" or "Shared". One reason: I want this post to stay visible THANK YOU!

[mischa in reply to Kitten1978]

SIGNED.

[Kitten1978 in reply to mischa]

THANK YOU mischa

[amala57 in reply to Kitten1978]

Signed & shared many times! 😊

[Kitten1978 in reply to amala57]

THANK YOU amala57

[Naomi8 in reply to Kitten1978]

just signed!

[Kitten1978 in reply to Naomi8]

THANK YOU Naomi8

[MissFG in reply to Kitten1978]

Signed

[Kitten1978 in reply to MissFG]

THANK YOU MissFG

[Binky45296 in reply to Kitten1978]

Didn't know about it, signed it now

[Kitten1978 in reply to Binky45296]

No probs! THANK YOU Binky45296

[Safarisand in reply to Kitten1978]

Safarisand, signed

[Kitten1978 in reply to Safarisand]

THANK YOU Safarisand

[The_will_of_Jill]

Signed and shared. US here, but will prompt my friend Jean in Ireland, and another friend Mick in England. Shared on Twitter I'll on Facebook as well. This is so very important and only takes a few minutes or less! 🦋💕

[Kitten1978 in reply to The_will_of_Jill]

THANK YOU SO MUCH The_will_of_Jill

[The_will_of_Jill in reply to The_will_of_Jill]

They signed. Shared on FB. Can't figure out how to share on Instagram though.... (?)

[Kitten1978 in reply to The_will_of_Jill]

I'm not on instagram ;( Can you just copy and paste the link???

[The_will_of_Jill in reply to Kitten1978]

I tried several times but it's not working… It re-pastes the code but you can't touch it to pull it up (the person viewing it on my page I mean)

[The_will_of_Jill in reply to The_will_of_Jill]

I'll figure something out

[Kitten1978 in reply to The_will_of_Jill]

I'll keep my fingers crossed you will

[nightingale-56]

Please sign and share for those of us who had our Levothyroxine changed to a generic one and have had very much worse health since then. For my son and me that has been for the past 7 years. We will only be left with Levothyroxine if we let T3 just fade away, and Levothyroxine has deteriorated over the past 7 years or more. please sign and share.

[Kitten1978 in reply to nightingale-56]

THANK YOU SO MUCH nightingale-56

[Shelley1954]

Signed, something we all need to do, one chance only!

[amala57 in reply to Shelley1954]

Agree! Now is the time. Sieze the moment. Ride the wave #NHST3#keept3 😄

[Kitten1978 in reply to amala57]

THANK YOU amala57

[Kitten1978 in reply to Shelley1954]

THANK YOU Shelley1954

[thedoghouse]

Signed and shared.

[Kitten1978 in reply to thedoghouse]

THANK YOU thedoghouse

[The_will_of_Jill]

I tried several times but it's not working… It re-pastes the code but you can't touch it to pull it up the person viewing it on my page I mean

[Kitten1978 in reply to The_will_of_Jill]

Never mind. Thank you for trying

[hobbycat]

Signed. Shared. And off to see MP on friday !!

Every action taken will make a difference somewhere - doing 'nothing' is a choice to not take action !

Let's link arms together.

[Kitten1978 in reply to hobbycat]

THANK YOU hobbycat

All the best of luck with your MP on Friday!!! I'll keep my fingers crossed they will be helpful

[GreenGoddess in reply to Kitten1978]

Shonajanedeick

[Chunipet]

Signed and shared not only for all of us currently dealing with thyroid issues but for those yet to be diagnosed. Future treatment looks bleak.

[Kitten1978 in reply to Chunipet]

THANK YOU Chunipet

[Pamela0106]

Massive spike in signs today - 20k milestone achieved and still growing! Fabulous. X #TUK #ITT

[Hidden]

Signed shared and happily tweeting my socks off.

As a relative newbie I'm still on levo and so far I feel good, now that my dose has been increased. But I know that may very well change as time goes by.

Since I joined the forum I've learnt from the wonderful generous people on here that they too were once good on levo. So to me this campaign is about ensuring everyone can have better treatment including T3 and NDT if they need it.

If you've just joined your voice is just as important. So please sign, from the link up there or down here😁

change.org/p/itt-campaign-g...

TUK and ITT want the same thing 😊💞

[marigold22 in reply to Hidden]

SolsticeSS - I do have a Twitter account but rarely use it. The few tweets I have done, I never get a reply. I think I'm doing something wrong. Any advice please

[Hidden in reply to marigold22]

Hi Marigold, get back into it and join in😁, the more the better.

I'm @SolsticeSShypo ITT campaign is @campaign_itt TUK is @thyroiduk_org

The idea is to get the messages spread through people that 'follow' you. You can retweet RT any of our messages. I joined it purely to support the campaign. The more you use it the easier it gets, but it's less about 'chatting' though that still happens. Have another go😊 see you there😉 x.

[Kitten1978 in reply to Hidden]

THANK YOU Hidden

[JMo1]

Signed and shared

[Kitten1978 in reply to JMo1]

THANK YOU JMo1

[marigold22]

Sent link to my sister and my neighbour, asking them to sign and share.

[Kitten1978 in reply to marigold22]

THANK YOU marigold22

[Camdentown]

Come on, people! You can have a boob job on the NHS and get Viagra, but we can't get a drug that not only keeps us alive, but prevents us having to use the stretched resources of the NHS in other areas. I'd love to be able to quantify what the prescribing of T3 could save from the mental health, cardio and endocrinology budgets, or even general down time in a GP surgery. Is anyone knowledgeable enough to take a stab at this? It seems that the only way to get through to the decision makers would be with cost saving figures.

[Kitten1978 in reply to Camdentown]

THANK YOU Camdentown

And yes, I agree: financial argument would be the strongest argument. Instead of talking to endos and GPs perhaps we should convince financial directors of the NHS and influential economists.

There was an IAPT initiative on the NHS started over 10 years ago. The idea was to increase an access to psychological therapies. IAPT received huge funding from the NHS because an economist, Lord Richard Layard, provided a report in which he argued that if people with depression and anxiety received treatment it would save the UK economy a lot of money:

en.wikipedia.org/wiki/Richa...

So the economical argument won, not the ethical or moral...

Kitti1 for info.

[TaraJR]

Had already signed and shared

[Kitten1978 in reply to TaraJR]

THANK YOU TaraJR

[Hidden]

Signed and shared

[Kitten1978 in reply to Hidden]

THANK YOU Hidden

[Hidden]

S & S

[Hypo51]

Signed

[Kitten1978 in reply to Hypo51]

THANK YOU Hypo51

[Helena877]

Already signed.

Yes - quite seriously members on this site need to pull their finger out. It's alright popping in an utilising the valuable knowledge shared. Time to give back now - and here's your chance.

[Kitten1978 in reply to Helena877]

BIG THANK YOU Helena877

[Kaz2206]

Signed and shared 😃

[Kitten1978 in reply to Kaz2206]

THANK YOU Kaz2206

[marigold22]

Regular contributors can go into their healthunlocked name, click on People Near Me, make sure you click on Thyroid section, you will then get members who live within a certain distance to you. Go through them one by one, check that they haven't contributed for at least one month; also look at their Replies as they may have been on the forum recently. Then PM them the message I have written

I hope you don’t mind me contacting you via Private Message on the Thyroid section of healthunlocked.com.

I have found you by putting in ‘people near me’ so you are within 25 miles of me.

You may not have looked at healthunlocked Thyroid lately, so you may not know about the massive campaign called ITT (Improve Thyroid Treatment).

Thyroid UK and the Thyroid section are being inundated with newbies desperate for help and advice; there are also many who have suffered for many years. Some have managed to get their good health back with the help of healthunlocked.

Please click on the link below and sign the petition. Also please share it with as many family, friends, work colleagues etc as possible, asking them to share it also. If you are on Facebook, please add the link. Many thanks.

change.org/p/itt-campaign-g...

[Jtaylorhoo]

I have signed the petition & if I could sign it a million more times, I would. 🖌🖌🖌

[Kitten1978 in reply to Jtaylorhoo]

THANK YOU SO MUCH Jtaylorhoo

[Kitten1978 in reply to Kitten1978]

THANK YOU Tracy11 for liking this post I assume you signed the petition?

[Tracy11 in reply to Kitten1978]

Yes, in the ITT group and also shared x

[Kitten1978 in reply to Tracy11]

BIG THANK YOU xx

[Kitten1978 in reply to Kitten1978]

20,820 signatures

Please SIGN and SHARE this petition.

We need 100,000 UK signatures to make sure it's discussed in the Parliament.

[DJR1]

Signed

[Kitten1978 in reply to DJR1]

THANK YOU DJR1

[GarryB]

Signed from Canada

[Kitten1978 in reply to GarryB]

THANK YOU GarryB

[Spareribs]

just a thought - it is very possible that 2 thirds of members are no longer here...

1 - forgot log-in/password

2 - got better & left

3 - didn't get better & gone elsewhere

4 - left/dormant for other reasons....

I remember the last TUK petition gained over 10k & a gov response

But let's keep going & see

Members can also contact their local healthwatch (see pinned post) and M.P.

healthunlocked.com/thyroidu...

er.... so Satan was an alien?

[Kitten1978 in reply to Spareribs]

Hi Spareribs,

Yes, I know we don't know how many members are still active...we just hope they are still out there and check their accounts, at least occassionally.

It's reassuring that TUK petition with over 10k signatures gained a gov response BUT there more signatures this one gets then higher the likelihood that it will be noticed and discussed. Let's hope for the best but prepare for the worst...

Take care x

[Kitten1978 in reply to Spareribs]

P.S. Good point about the Satan-alien hybrid! I just though it looked ...different That's what watching X Files as a youngster does to you lol ....

[2steptootsie]

Already signed on ITT and shared ..... posters arrived today, thanks Kate Potter!

[Kitten1978 in reply to 2steptootsie]

THANK YOU 2steptootsie

[EveP]

Signed & shared loads & also in Canada at the mo 😋 keep up the great work Kitti & everyone else working so very hard on the ITT Campaign 😊 Together we can do ITT, Together we can WIN 😊

[Kitten1978 in reply to EveP]

BIG THANK YOU EveP

[Kitten1978 in reply to Kitten1978]

21,127 signatures

Please SIGN and SHARE this petition.

We need 100,000 UK signatures to make sure it's discussed in the Parliament.

[Kitten1978 in reply to Kitten1978]

21,271 signatures

Please SIGN and SHARE this petition.

We need 100,000 UK signatures to make sure it's discussed in the Parliament.

[SandraS68]

Had already signed & shared. Will share again!

[Kitten1978 in reply to SandraS68]

THANK YOU SandraS68

Every single signature counts!

[Kitten1978 in reply to Kitten1978]

21, 432 signatures

Please SIGN and SHARE this petition.

We need 100,000 UK signatures to make sure it's discussed in the Parliament.

[Kitten1978 in reply to Kitten1978]

21,527 signatures

Please SIGN and SHARE this petition.

We need 100,000 UK signatures to make sure it's discussed in the Parliament.

[Kitten1978 in reply to Kitten1978]

22, 265 signatures

Please SIGN and SHARE this petition: change.org/p/itt-campaign-g...

We need 100,000 UK signatures to make sure it's discussed in the Parliament.

[Cariad-y-Mor]

Live in Wales....but already signed. 💜

[Kitten1978 in reply to Cariad-y-Mor]

THANK YOU Cariad-y-Mor

I hate to tell you but nobody's T3 is safe. Some people have already had their T3 withdrawn in Scotland. Pamela0106 had to fight to have hers reinstated. It's only a matter of tiem before Wales and NI are affected... ;(

[Pamela0106 in reply to Kitten1978]

I cannot tell you how many letters, complaints and appointments and MP intervention it took for me to get mine reinstated and even then it's still at risk of being taken away again. 😩

Arghhhh I hate this stupid bloody disease!!!!!!

[Kitten1978 in reply to Pamela0106]

Thyroid disorders are pain in the ass but most of us suffer because we are not diagnosed on time and then poorly treated. It wouldn't be so bloody difficult if we receiving the care we all deserve!

[Kitten1978 in reply to Kitten1978]

22,637 signatures

Please SIGN and SHARE this petition: change.org/p/itt-campaign-g...

We need 100,000 UK signatures to make sure this petition is discussed in the Parliament.

[Kitten1978]

23, 413 signatures

Please SIGN and SHARE this petition: change.org/p/itt-campaign-g...

We need 100,000 UK signatures to make sure this petition is discussed in the Parliament.

[nonstopmummy]

Signed and shared. Well done for driving this petition we need more peeps like you x

[Kitten1978 in reply to nonstopmummy]

THANK YOU nonstopmummy

27,572 signatures

Please SIGN and SHARE this petition: change.org/p/itt-campaign-g...

We need 100,000 UK signatures to make sure this petition is discussed in the Parliament.