Please help!: So, I had another set of test... - Thyroid UK

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Please help!

Nicki24110 profile image
10 Replies

So, I had another set of test results back today and I'm baffled. Please can you help me.

TSH was 4.21 in June and it's now 3.88

T3 was 5.3 in June and is now 5.8

T4 was 15 in June and is unchanged

Thyroid antibodies were 79 in June and results aren't back yet

B12 has gone from 341 to 258

Ferritin from 28.0 to 36

Folate from24.0 to 24.0

I've been on iron tablets for 2 months already. Currently not receiving any thyroid treatment

Thanks in advance

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Nicki24110
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Clutter profile image
Clutter

Nicki24110,

TSH fluctuates throughout the day so TSH is higher in the early morning and lower during the afternoon and evening.

Thyroid peroxidase antibodies are positive for autoimmune thyroid disease (Hashimoto's) and this can cause fluctuations in TSH, FT4 and FT3.

There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it eventually causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies and it may delay progression to hypothyroidism.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

TSH >2.0 indicates your thyroid is beginning to struggle but FT4 15 and FT3 5.3 - 6.5 are usually within range and euthyroid (normal). Perhaps you could ask for the lab ref ranges in future as it makes it easier to advise. You are not likely to receive a NHS diagnosis of hypothyroidism until TSH is over range (usually >5.0) or FT4 is below range.

B12 258 is lowish. If you have symptoms of deficiency in b12deficiency.info/signs-an... go to healthunlocked.com/pasoc

Folate is good.

Take each iron tablet with 1,000mg vitamin C to aid absorption and minimise constipation.

Nicki24110 profile image
Nicki24110

Thanks clutter, tests in June and these last ones were done at 9am, I don't understand why TSH has been creeping up then started to come down only on this last test

greygoose profile image
greygoose in reply toNicki24110

That's the antibodies doing that.

Nicki24110 profile image
Nicki24110 in reply togreygoose

Grey goose, I feel like it's 1 step forwards and 2 steps back, just when docs said if TSH levels have gone up she would start treatment. I see my dr next week to see what she's going to do.

greygoose profile image
greygoose in reply toNicki24110

Well, that's going to happen when you have antibodies - and she should know that! And she should be treating you anyway, as you have antibodies. Plus, you are actually hypo when your TSH hits 3. So, not surprising you have symptoms.

Nicki24110 profile image
Nicki24110 in reply togreygoose

I don't know what I'd do without this forum, at least everyone understands what people are going through

greygoose profile image
greygoose in reply toNicki24110

Oh, we surely do! :(

elizabethbinion profile image
elizabethbinion

What are your symptoms like at these levels?

Nicki24110 profile image
Nicki24110

My symptoms are severe tiredness, splitting nails, constipation, loss of sex drive, stiff joints, dizziness, mood swings, dry mouth, post nasal drip, dry skin, dry gritty eyes, brain fog. The list seems endless

elizabethbinion profile image
elizabethbinion in reply toNicki24110

I have all those symptoms plus weak legs and arms, numbness and tingling in legs and arms, adrenaline type surges that wake me up, etc. The list IS endless! I'm so tired of all this!

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