letter to gp from endo

[elvera111]

I have received a copy of letter sent to my gp after consultation with endo last week.

Lady has been unable to reduce her prednisolone since her visit 6 months ago. Mainly due to frequent hospital visits after long period of being housebound.

She had her bloods repeated today. which showed a macrocystosis with an MCV of 104 but a normal eosinophil count of 0.19

her PTH was 4.8.

normal peroxidase antibodies at 17. An autoantibody screen including for ANCA and lupis type antibodies is all negative.

hmm what does this mean.. i had asked him to test my DHEA is that reflected in any of these tests.

He has dismissed me saying that my peak flow which goes from 50 to 400 is not air hunger but asthma despite that i dont wheeze.

he also said my oxometer reading of 88 sometimes, is result of COPD

He has reffered me to a pulmonologist.

my free t3 has improved a bit, i think its down to eating proper food

Free T3 .. 2.8 in january 3.1 in March and 3.2 today. range 3.1 - 6.8

dhea 0.1 0.26 - 11.0 (tested in private lab last week)

my cholesterol is high which cant be helped whilst on steriods. my b12 was 473 last time and i am taking folic acid at min.

do you think i should ask gp for b12 injections

[startagaingirl]

Hi- your problem isn't low b12, it is low thyroid hormone. FT3 should be at least within range without any treatment. If on replacement thyroid hormone it should be in the top third of range - usually 5.5+. Yours is normally under range and the rest of the time just scrapes in at the very bottom of the range. If neither your GP nor endo has never addressed this then you should change your doctors. Your results indicate that you have a pituitary problem and hence it is not stimulating your thyroid in the way it should to produce the hormones that you need. You need replacement hormone - and with the NHS this means levothyroxine. Because of other issues you would probably be started on 25mcg and should be re-tested after 6-8 weeks with dose raises until ft3 is much higher in range. TSH needs to be ignored in your case as it is not relevant with a pituitary problem.

I have looked back through your earlier posts and see that you tried NDT at one stage - are you still on that? If you continue to struggle to get doctors to acknowledge your thyroid issue would you not continue to take and raise that as required?

Gillian