Thyroid UK
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My latest test results

These were done privately as my GP will only test for TSH and won't prescribe T3

TSH (High) 14.01 mlU/L

Free T4 18.64 pmol/L

Free T3 (low) 2.94 pmol/L

I have left ventricular systolic dysfunction that has now developed to stage 3 heart failure so it's all really complicated.

16 Replies
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Does your cardio have any say in prescribing for your very low and probably under range T3? I know that T3 is very important for cardiac health.

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I had a cardiac arrest last year in March and will get to see the cardiologist for the first time next month so I will be asking about this.

He might be able to let the GP know that I need T3....which I was prescribed in hospital and sent home with

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There are articles around about the function of T3 in helping with heart failure particularly. Some have appeared on here not so long ago.

I wish you the very best and a solution to this problem. Include you in my prayers xx

janveron1

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Thanks for your kind reply. I was prescribed T3 in hospital to treat my heart failure and used the T3 they sent home with me but when I asked my GP for some they refused. My GP only tests for TSH which is why I had the recent test done privately

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I think you should buy your own T3 if at all possible. Low T3 is very bad for the heart. Having to rely on doctors for T3 is a bad idea, in my opinion.

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I have no-one supervising the T3 levels so I don't know what dosage to take. I am not about to start on a powerful hormone without some kind of monitoring

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But you're not really being monitored now. I have right sided heart failure, I self medicate. I'm on Levo and T3 and get myself tested. My heart suffers when my T3 levels are low.

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Looking back on my previous posts on here it appears I was doing a lot better on T3 last spring and summer than I have been since without it. The blood test I paid for recently is the first private blood test I have had and the first time I have had in writing that my T3 was low.

My GP recently said that he wanted me to increase the levothyroxine only low T4 isn't the reason my TSH is high

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Found this thread of mine from last year

healthunlocked.com/thyroidu...

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I think you have your answer there! Why did you stop the T3?

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circheartfailure.ahajournal...

One of many papers. Are you under a cardiologist? Maybe he would prescribe? Surely the GP cannot withhold medication in this case?

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I had a cardiac arrest last year in March and the staff put it down to low T4...only I was prescribed T3 by a hospital doctor and sent home with some. This is why I asked the GP for some more only they refused.

I see someone from the cardiac team next month for the first time so I will be taking my blood test result and report with me to the appointment

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I didn't feel confident about continuing with it as I had no-one helping me monitoring the dosage and so on.

That has all changed now with finding a doctor to comment on the test results

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You must tell the cardiologist what you have told us and that you were discharged with T3 but your doctor refused to give you any more! Shocking!!!!

Hope the cardiologists helps and you start to improve.

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I still have the note from the hospital pharmacy which says I would be given another prescription in due time. I must have been handed it at some point only I don't remember that happening. I found the note in my bag with no idea how it got there

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Make a copy of the note and give it to your GP.

Tell the Cardiologist how much better you were on T3

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