Ann-Simpson Why does the endo say you may not have a thyroid problem after all?
When we're you diagnosed? Do you have the results from then? I'm sure you wouldn't have had a diagnosis if you didn't fit the criteria.
Your FT4 is half way through range but FT3 very low in range. The aim of a treated hypo patient generally is for TSH to be 1 or below or wherever it is needed for FT4 and FT3 to be in the upper part of their respective reference ranges. Your free Ts are too low, and also show poor conversion so withdrawing your T3 was wrong.
From ThyroidUK's main website > About the Thyroid > Hypothyroidism > Treatment Options:
"Dr Toft states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l. Most patients will feel well in that circumstance.
But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
Dr Toft is past president of the British Thyroid Association and leading endocrinologist. You can obtain a copy of the article by emailing firstname.lastname@example.org to show your endo.
Dr Toft also wrote the following booklet for the British Medical Association mentioned under Treatment Options, which states:
"According to the BMA's booklet, "Understanding Thyroid Disorders", many people do not feel well unless their levels are at the bottom of the TSH range or below and at the top of the FT4 range or a little above."
It might be worth getting the booklet, it's about £4.95 from Amazon or your local pharmacy.