Here's a conundrum with a million possible answ... - Thyroid UK

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Here's a conundrum with a million possible answers...

steviecat profile image
6 Replies

Hi.

I don't think there is a definitive answer to my question, but any suggestions muchly appreciated :-)

For many months after being diagnosed hypo, I was taking 25mcg of Levo. I knew nothing about the condition at that time and accepted that my GP would be keeping an eye on things... Eventually, I had some blood tests - at my instigation - and Levo was raised to 50mcg. Within a week or two, I began getting palpitations - ectopic beats. I persevered for a few weeks, but then decided, after reading some of Dr Lowe's research papers, that I would go down the NDT route. At that point my numbers were pretty bad - TSH 11.

I stopped taking Levo for two weeks, during which palps continued. Then I started a gradual process of introducing NDT (Thyro-Gold). That was three months ago. The palps have continued throughout this time. My numbers are great now. I will append my last tests just for info.

TSH 0.358 (0.27-4.20)

Free T4 15.37 (12.00-22.00)

Free T3 5.46 (3.10-6.80)

All my mins and vits are pretty-good.

I did have a cortisol saliva test two weeks ago - 3 of the 4 results were below range.

I'm interested if anyone has had a similar experience, or can suggest possible reasons for the palps. I realise that it's a tall order, but hey, one never knows...

For added info. I have had two cardio appointments in the last week. The cardio did and ECG and Echocardiogram. His words: 'There is nothing wrong with your heart'. Nonetheless, I do have to wear a monitor for 24 hours at the end of the week.

I have pondered this for a while now. The only thing that strikes me is Levo is T4 and there is T4 in Thyro-Gold. Is this an allergy issue?

Sorry for the long post, I'm in quite a good place, but the palps do get to you after a while.

Many thanks :-) x

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steviecat
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6 Replies
Marz profile image
Marz

So what are the levels of vitamins and minerals that you say are pretty good ? - does that mean OPTIMAL ? Nothing works well without the basics in place ....

steviecat profile image
steviecat in reply to Marz

Hi, Marz.

Vit B12 436 (140-724)

Vit D (Don't have latest result - last was very low 3 months ago but have been supplementing high doses since, 10,000 iu per day for 8 weeks, 2000 iu per day for 4 weeks so assumed...)

Folate 19.98 (3.98-26.80)

Ferritin 201.1 (30.00-400)

Thanks for looking :-)

Marz profile image
Marz in reply to steviecat

Looking pretty good :-)

BootsOn profile image
BootsOn

I've had palpitations a couple of times, both times due to low cortisol.

steviecat profile image
steviecat

Thanks, Boots. I have been wondering... ;-)

Cariad-y-Mor profile image
Cariad-y-Mor

I do not have the knowledge and expertise that many members have on here but I only started getting ectopic beats ( about a year ago) after my thyroxine was reduced. This was due to the lab saying my TSH was too low ( I now know it wasn't ). The ectopics only came back around the time I was eventually found to have very low (8) Vitamin D which was in January this year. I am still not really sure what caused them......the Cardiology dept just said ( after numerous ECG's and wearing a monitor, that they are very common and nothing to worry about !! Easy for them to say....they not happening to them. 😲

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