To increase or not yet?: Morning,Just want to... - Thyroid UK

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To increase or not yet?

Dahliasanddaisies profile image
28 Replies

Morning,Just want to check what you all think.

I'm trying to get from 75mcg levo - 100. Went straight for it in April and the anxiety was too much after a few weeks

Came back to 75mcg, tested after 6 weeks (will attach results)

Based on this and your advice (Buddy) I have been going slower and tried 87.5mcg daily. This has been much better. Less anxious and some good days. I'm now on week 5 + 4 days and not having a great week. Feel more tired and sort of unwell.

Had an appointment work the Thyroid Clinic yesterday who agreed I'm under medicated and have put me up to 100mcg. Starting straight away.

I'm not sure whether to give the 87.5mcg time to settle a bit more or just to step up now to 100mcg?

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Dahliasanddaisies
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TiggerMe profile image
TiggerMeAmbassador

Yes, you are ready for and increase just take it at your own pace with small increases

Unfamaliar_Comet profile image
Unfamaliar_Comet

How are you getting on?

Similar situation as yourself as have gone up to 100mcg and my anxiety has increased. It’s odd in that it’s noticeably raised but for no reason. As in I don’t have palpitations etc, it’s just there more often. Going to stick at 100mcg and hopefully it’s just my body speeding up a bit??

Hope it’s going better for you now.

Dahliasanddaisies profile image
Dahliasanddaisies in reply toUnfamaliar_Comet

Morning, yes I'm just over 3 weeks into 100 (did 6 weeks at 87.5) and feeling okay. Last time, it was about week 4 that I started to get more anxiety symptoms, so I'm wondering what next week will bring!!

I think best to stick with it if you can, I'm definitely going to try to! It felt like I'd had a double espresso (I'm not drinking caffeine atm) so not awful but a bit disconcerting. Generally wore off after a few hours, but it's like you don't know what to do with yourself.

My general resting level of anxiety has been up and down. Much much better than on 75, so I'm hoping eventually it will go away!

Hope you feel better soon

Unfamaliar_Comet profile image
Unfamaliar_Comet in reply toDahliasanddaisies

Thanks, that’s good to hear that you’re managing to stick with it. Really hoping that the slow increase works this time and week 4 doesn't creep in!

I get the coffee example completely, it’s not like a caffeine rush for me though, just that the thoughts are more prevalent. Hopefully it’s just the brain ticking over a bit more and my ruminations are up. Will keep going and let you know if it goes away (hopefully 😃). I’ve never had my vitamins tested so my next lot of bloods including those will be interesting.

Dahliasanddaisies profile image
Dahliasanddaisies in reply toUnfamaliar_Comet

Ah well I hope that provides some useful info!

If you don't already, I find that hypnotherapy for anxiety (use you tube) can be really useful for those thoughts x

Unfamaliar_Comet profile image
Unfamaliar_Comet in reply toDahliasanddaisies

Beat me to it. Was just looking up meditation audiobooks but hadn’t thought of hypnotherapy. Will give those a try too 😃

Good luck for the next few weeks. Would love to hear how you get on.

Dahliasanddaisies profile image
Dahliasanddaisies in reply toUnfamaliar_Comet

Yes there are some good ones on Audible. I like Andrew Major on YouTube.

I'll keep you posted :)

Dahliasanddaisies profile image
Dahliasanddaisies in reply toUnfamaliar_Comet

Hi Comet...well week 4 has been awful (and not over yet)!! I knew it would be but blimey, it's a good job this forum is here else I would have stopped my increase already. Anxiety back, chest pains, breathlessness and hideous reflux/indigestion. Feel like I can't eat anything at the moment, not much appetite either (not a bad thing!).

How are you feeling? Anxiety any better?

Unfamaliar_Comet profile image
Unfamaliar_Comet in reply toDahliasanddaisies

Sorry to hear that Dahlias. I know you were readying yourself for it but still, rubbish to go through. Is it the combination of the symptoms driving it or is the anxiety just there?? Are you feeling any better in others areas, just so you know you stick with it??

I’m on week 3 (I think) and I definitely had noticed my anxiety increasing but have been hoping it was just my metabolism kicking up a notch. Feeling hot and my extremities tingling. Has calmed down a bit though so have fingers crossed that that’s it.

Are you planning on pushing through then? Is it something others have had and been able to help with to encourage you through? Really hope so!! I’ve only posted a couple of times so mainly lurk to learn and this site is nothing short of amazing. Really, really hoping you can stick with the dose increase.

Andrew Major has been fab to listen to by the way 😃 brilliant just before sleep so thanks for the recommendation. I’ve been trying all sorts to help the anxiety, just different techniques, kind of hoping that something sticks. One of the main ones has been trying self-compassion. Just being kind with yourself. That’s been helping a bit but has been so much harder than it sounds - Kristin Neff (?) is good to listen to. Don’t know if that might be a help???

Dahliasanddaisies profile image
Dahliasanddaisies in reply toUnfamaliar_Comet

Ah I'm glad it's been useful, he's got a great voice! Yes I'm going to stick with it, others have said week 5+ things should settle, but obviously its different for everyone. I don't want to go backwards, I wasn't well on a lower dose either, so the only way is up.

The anxiety is different this time, and yes the breathing and digestive issues might all be anxiety related...it's a fun guessing game!

Hope you feel okay this week. I'll check in in a few weeks :)

Unfamaliar_Comet profile image
Unfamaliar_Comet in reply toDahliasanddaisies

How are you doing Dahlias? Hanging on in there.

Side effects have started to drop here, so has the anxiety, so there’s hope with sticking with it. Hope you’re finding the same, or the help to push through with the new dosing.

Dahliasanddaisies profile image
Dahliasanddaisies in reply toUnfamaliar_Comet

Ah that's great! I'm really pleased for you. I've had an awful week but I've got pmt to so that doesn't help. The anxiety has no rhyme or reason to it 😕 week 5 for me now, so I'm sure next week will be better

Unfamaliar_Comet profile image
Unfamaliar_Comet in reply toDahliasanddaisies

Sorry to hear that. Having that on top isn’t going to help is it ☹️

Bizarre about the anxiety isn’t it? When mine was bad it was like a taunt wire buzzing constantly. Not pleasant for us that experience it. Really hoping you come out the other side of this soonest.

Dahliasanddaisies profile image
Dahliasanddaisies in reply toUnfamaliar_Comet

Thank you, we must be turning a corner soon hey !

Unfamaliar_Comet profile image
Unfamaliar_Comet in reply toDahliasanddaisies

Absolutely 😁

WestElf profile image
WestElf

Hi Dahliasanddaisies hope you don’t mind me popping onto your post? Just wondering how you’re getting on with the anxiety? I’m at the end of Week 4 of a dose increase and the last couple weeks have been brutal with anxiety. I’ve suffered with anxiety in the past so I’m no stranger to it but I’m finding it tough going at the moment. Hoping that it will ease in the coming weeks… I’d followed your post as it was reassuring to me that others on here feel the same - although of course I wouldn’t wish this on anyone!

Dahliasanddaisies profile image
Dahliasanddaisies in reply toWestElf

Hey, course I don't mind! Yes week 4 and 5 were brutal. Week 6 seemed to turn a corner but not quite back to 'normal' haha. The anxiety manifests in strange and different ways just to keep me on my toes!

I'm sorry you're struggling too, it will ease off but it's so hard when you're in the thick of it, days last forever when you feel anxious. It's the heart/chest issues which are the most distressing for me, they were really bad in week 4.

Are you doing any meditation/yoga nidra/hypnotherapy? Anything to relax your nervous system. Try some vagus nerve exercises to help with any excess cortisol (look on YouTube etc) take care x

WestElf profile image
WestElf in reply toDahliasanddaisies

Thank you for replying! I’m glad to hear things have eased a little bit for you. Yes, the days last forever!

For me it’s all anxiety around eating/drinking. I suffer with slow swallow reflex, poor appetite and other eating related issues usually, but now with the anxiety it is absolutely terrifying to eat and I can only manage to get a little bit eaten at a time by myself in a room alone. Very stressful, strange and upsetting.

Those are some good tips - I find meditation very beneficial when I do it so will get back on that. And yes, vagus nerve exercises - I’ve heard of them but not done them - will give them a go.

Thanks again for your response : )

Dahliasanddaisies profile image
Dahliasanddaisies in reply toWestElf

Gosh you poor thing, that sounds really distressing. I have found real anxiety about taking medication/vitamins that I never had before. Some days I just can't swallow pills, it's ridiculous. If you're on Instagram, I like Health with Holland. She has a good take on vagus nerve stimulation.

WestElf profile image
WestElf in reply toDahliasanddaisies

Brilliant, thank you, I’ll check her out.

FallingInReverse profile image
FallingInReverse in reply toWestElf

Popping in to say that week 5 has in the past been the worst for me too… week 6 better and by 8-9-10, so far, it has always settled down. I’m now a few weeks in to my latest so going through it again!!!

Good luck everyone!!

Dahliasanddaisies profile image
Dahliasanddaisies in reply toFallingInReverse

Yes the same, week 4 and 5 awful by week 6 I'm okay. Hoping to feel good? For a few weeks before another increase 🙄

Dahliasanddaisies profile image
Dahliasanddaisies

WestElf and Unfamaliar_Comet hey both, hope you're doing okay now? Just wanted to say that by week 8 I'm feeling much better, most of the physical symptoms of anxiety have gone..yay! Just had new bloods and looks like I need an increase, so will be doing it all again 😱

WestElf profile image
WestElf in reply toDahliasanddaisies

Sorry I didn’t see this post until now. I’m really glad to hear you are/were feeling better. Have you increased your dose again?

Dahliasanddaisies profile image
Dahliasanddaisies in reply toWestElf

Thanks! Yes increased again and feeling worse again...oh the joys

WestElf profile image
WestElf in reply toDahliasanddaisies

Oh that’s really awful for you - so hard to increase when you know you’re going to feel like this. I suppose there is some comfort in knowing that it will pass eventually but still, you are very brave.

Dahliasanddaisies profile image
Dahliasanddaisies in reply toWestElf

Yeah it's really taxing, knowing you've got to keep going through it. But I did have a few 'good' weeks but my bloods showed I needed an increase and I still have no stamina, I'm desperate to be able to walk places again. So maybe by Xmas I will.have finished increases...fingers crossed. Thank you for your kind words :)

For anyone following this thread (and my own reference) Week 4 of increase to 112.5mcg, typically been feeling off again. Hot flashes? (That's a new one!), like my chest and neck are on fire. Increased anxiety, chest pain, high HR in the mornings especially.

Roll on week 6 😊

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