Saw my really nice endo today.: So saw my... - Thyroid UK

Thyroid UK

137,649 members161,425 posts

Saw my really nice endo today.

Hypo101 profile image
6 Replies

So saw my wonderful endo today who was very nice, intelligent and really cared about what's going on.bUp until this year he was prescribing both t3 and NDT. He's now been forced to stop and he's appealed many times and has done everything he possibly can for his patients but being letdown himself. He said he would monitor me while I self treat but shouldn't have to do that. Surely the people who have made the ban can be done/sued for medical negligence cos that is what they are doing? Latest bloods showed TSH at 0.3 and free t4 think at 20 or 21 but no free t3. He was going by earlier blood tests which hospital organised. I unfortunaly can't remember those results but my T4 was 23 so overrange slightly and free T3 was 5.1 (3.8 - 6.8) I said about self medicating and I can't remember if he said take it three times or two times a day but he said drop your levo dose by 25mcg ( on 125mcg so drop to 100mcg) then add 5mcg of T3 in morning and again in afternoon. I can only get T3 in 25mcg though so will have to split it into 4. He also said nature throid was the best in consistency and potency.

I've got another appointment in 3 months with bloods. So where should I start?

Written by
Hypo101 profile image
Hypo101
To view profiles and participate in discussions please or .
Read more about...
6 Replies
shaws profile image
shawsAdministrator

I'd take your dose of T3/T4 once daily.It's less of a bother. I myself take one daily dose. of whatever combination I've taken and It is far easier to find a window when your stomach is empty as food interferes with the uptake of hormones.

I am glad you have a nice Endo who is aware his patient cannot convert.

So you are to take 100mcg levo thyroxine and 10mcg of T3 daily. You don't need to quaerter your 25mcg as half is 12.5 so it is quite near 10 it is going to be fiddly if you take it in quarters.

Also keep an eye on your pulse/temp and if either goes too fast (I don't think it will as dose of T3 isn't high) reduce dose slightly.

I hope you feel better quite soon.

Hypo101 profile image
Hypo101 in reply to shaws

How long should I wait after taking the combination to eat? Thank you very much for your help!

shaws profile image
shawsAdministrator in reply to Hypo101

If you take the combination when you get up (your stomach is empty) and take dose with one glass of water and then wait approx one hour before eating. Some people prefer bedtime dose, in that case you should have last eaten if your meal contained protein about 2.5 to 3 hours before taking combo. If you were having a blood test next morning you'd miss this night dose and take after blood test and at bedtime as usual.

Stourie profile image
Stourie in reply to Hypo101

Hi, you should wait for at least an hour before having anything but water.

Jo xx

Hypo101 profile image
Hypo101

If I were to try Nature Throid instead of T3 on it's own, what dose would i start with? One grain a day? So 65mg thyroid extract (1 grain) contains 38mcg levothyroxine (T4) and 9mcg liothyronine (T3)

shaws profile image
shawsAdministrator in reply to Hypo101

If switching from T3 to Nature Throid, 1 gr is equal to around 100mcg of levo and T3 at 25mcg is around 100mcg of levo.

You may also like...

Thoughts on my latest blood results - saw new Endo today

and it’s better to feel better. I’m on 100mcg of Levo and 25mcg T3 Here are my results: TSH...

Saw endo today

per day plus a 25mcg levo so my levo dose works out to 62.5 per day plus 7.5 t3 as she said that...

Saw My MP Today

more we raise awareness. He'd done his homework and knew who I was. He said he would have no...

My endo appointment today, confused to say the least.

my t4 was 8.8, he said the results was just slightly over, I was started on 25mcg, then eventually...

Saw my endo last week, results are back and it's not good news...

Maybe I can start T3 on my own? Any advice on what I can do now....running out of valuable time and...