I'm new here. I'm a 34 year old female, diagnosed with ME/CFS 7 years ago, and shortly after (following much insisting) tested for and diagnosed with Hashimotos. My GP reluctantly allowed me to start taking thyroxine (my levels were within normal range at the time but I felt awful) and I've been stable now (results-wise) on 100mg a day since then although still far from well.
I saw some improvement to my symptoms for a few years but since having my baby last year things have really gone downhill and I'm struggling to cope with daily life. My baby is looked after by other people for 3 days a week, I get help for 2 days so I'm only on my own with her for 2 days but I'm finding that a real stretch. I'm in bed by 9pm every night and struggle to get out and do normal things at the weekend etc.
My main symptoms are extreme fatigue, muscle weakness (climbing the stairs, lifting the baby etc difficult to do), dry skin, sore throats (off and on), brain fog, headaches, constipation, general lethargy and malaise. I love being a mum and Im not depressed, just desperate for a bit more energy so I can live my life rather than just get through each day!
My latest set of bloods, taken a couple of weeks ago, were yet again 'normal' and the GP, although sympathetic doesn't have any more ideas of what might help and won't refer me to and endo when my results are ok. Here they are:
TSH - 1.3
FT4 - 18.7
Serum prolactin - 216
I asked for FT3 and my GP wrote on the form to ask the lab to do it even if TSH was normal but they didn't do it. I also asked if the antibody test could be done again as I don't have my previous result but apparently they only do that on diagnosis.
In terms of my diet, I've been low carb, eating loads of veg and veggie protein, and avoiding wheat, gluten, dairy, sugar for 3 months now. I'm also vegetarian so finding this quite restrictive, and feeling disheartened that it's made no difference to my symptoms.
I'm taking ubiquitol (co-enzyme Q10), niacinimide, d-ribose, fish oil, acetyl-l-carnitine and a multivit. I've also started taking a liquid iron supplement as my iron levels are on the low side of normal.
What should I do now? Is it worth going private? How do I decide who to see? Should I keep up with the diet even though I feel it's not doing anything?
Sorry for the long post! Thank you very much for reading and I would really appreciate any advice you might be able to offer.