I am exactly 2 weeks into my NDT changeover from 175 levo. I just want a bit of feedback on anyone's experience switching. I am taking supplements, avoiding gluten, and take 1.5 grains before bed. I feel awful, I wake shattered, and all my old symptoms are worse. Weak, ringing in ears, lethargy, insomnia .. I could write a book. My pulse is ok but waking temp is up. I don't want to throw the towel in but am scared of it worsening. I read and followed SSTM but they very pro NDT and as I am a poor converter wonder if I should now have gone down the levo plus t3 route after joining this group. In my poorly state I am fretting but don't want to give in and go back!
New to NDT symptoms: I am exactly 2 weeks into my... - Thyroid UK
New to NDT symptoms
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Skyebeardie,
You are undermedicated. 1.5 grains NDT is equivalent to 97.5mcg Levothyroxine. You would have done better to titrate Levothyroxine while you built up NDT. STTM advises dose increases of 1/2 grain at 2 week intervals. If you didn't have adverse reactions starting on 1.5 grains you could try a 1 grain dose increase now. It might be better to take the extra 1 grain in the morning to spread the T3 peaks. If you feel over medicated with the additional 9mcg T3 cut back to 2 grains.
Bless you, I expected to go through some changes but I feel so ill and when you spend your life relying on GP's and then go it alone it is scary. I will try another grain and see how it works. Thanks clutter.
Hi Clutter, I know it's only another 12 days since this question but I do feel awful. I am really not good with dreadful tinnitus, very weak, feel sick, weird feelings of tingling in my arms. It's become so scary and I am not able to do anything. I know it's a hard question but when do I say this is enough and NDT is not my answer. I want to continue but my body is not happy!
Skyebeardie,
You could try a different NDT brand or go back to 175mcg Levothyroxine.
I don't want to go backwards, I so want to get my life back but this is pretty awful. I will post requesting a source for natural thyroid. In the meantime, I will probably have to go back to levo, might try that plus t3 as I am a poor converter. Trial and error!
Skyebeardie,
How much NDT are your taking?
I take 1 grain at night, I now sleep in that. 1 grain in the morning yesterday. 2 grains at night leave me waking boiling hot and soaked. This morning 1 tried half a grain and feel feeble but not like yesterday, I barely got up. I am not a quitter but this is really scary. I should probably have done as you originally suggested and started levo plus NDT.
Skyebeardie,
You became undermedicated and it will take longer than 12 days to catch up. Why did you only take 1/2 grain this morning instead of 1 grain?
Skybeardie don't give up! It takes a while to get used to the difference and as Clutter says, you are under medicated. I know it's scary going it alone, I've been there, but it's worth it in the end. Good luck and better health.
I started taking NDT 4 weeks ago, having been on 225mcg for years. I started on only half a grain of NDT as I was so worried about having a bad reaction to it. But I was fine apart from a slightly nauseous feeling at first. Then I raised the dose reasonably quickly as I began to feel under-medicated and I'm now on 2 grains. I feel fine and seem to have more energy and to be doing more. I feel like I need to raise the dose again so I might do that next week.
Before I got up to 2 grains I began to get dry flaky skin (usually one of the first symptoms of under-medication that I get), and then when I increased the dose by half a grain my skin improved again. Hopefully if you increase your dose you might find you improve. Good luck.