LEVO to NDT back to LEVO!!: Good Morning Everyone... - Thyroid UK

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LEVO to NDT back to LEVO!!

Christinah61 profile image
12 Replies

Good Morning Everyone,

Can I say a Big Thankyou before I start for all the help and advice received from the Forrum.

After 20 months on Nature Throid - and at the beginning I did feel a lot better so I cannot complain.. as my previous posts details but over the last 5/6 months the last batch I received from my chemist in London has certainly not given me the results I was receiving and the thyroid symptoms have returned. However BH results show that the figures don't look to bad however, the symptoms are what we go by, so I decided to go back to GP yesterday and request my old prescription of 150mgs of levo.

Could the forum help me with the make of levo and dose...

At the moment I am taking 3 1/2 grains of Nature throid, 2 in the morning and 1 1/2 in the evening. My vitamins are optimal. after talking to the doctor yesterday she told me my dose was 150 mcgs before I went onto NDT. So how much levo should I start with or maybe take half ndt and half levo until my supply of ndt is used up??? I don't know. my local pharmacy stocks NorthStar Levo ? how does that brand stand regarding Nausea symptoms as that is one of my main symptoms which is debilitating sometimes as well as the joint pain etc...

Thank you once again

Christina xx

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12 Replies
Jazzw profile image
Jazzw

Depending on who you speak to, 1 grain of NDT is roughly equivalent to somewhere between 75 and 100mcg Levo. I say roughly cos obviously it’s not the same at all - it’ll take some time to get used to not having the T3 on tap.

So that puts a replacement Levo dose anywhere between 250-ish and 350mcg. Your doctor might go pale at the prospect, as prescribed doses tend to be much lower these days.

Have you considered getting hold of some T3 to take with Levo, and doing it that way? You’d need around 150mcg Levo and 25mcg liothyronine to do it that way (not exactly equivalent but close enough probably).

Christinah61 profile image
Christinah61 in reply to Jazzw

Oh jazzw thank you for your help yes i understand a bit more now i do have some lio here so we will see how it goes.....

Kazbe profile image
Kazbe in reply to Christinah61

Hi Christinah61

I’m so sorry to hear you are not well and going back to Levo !

I have had exactly the same problem I was on the Nature Throid for 4 months and all my old symptoms came flooding back ! I have got two bottles full of Nature Throid but they are just no good to me :( I am seriously wondering if the formulation has changed ?

I’m not trained in dosage or anything but I went straight back to my old dose of 75mcg Levo ! If I were you I’d go back to 150mcg for a few weeks or 150 one day then 200mcg the next and see how you go ! I take my temp every morning and my pulse that’s a good guide for me if anything goes too high drop back to previous dose 😀

It’s such a shame when you think you are finally winning and feeling better then something like this happens , keep me posted how you are getting on

I do hope you start to feel better soon 😀

Take care

Kazbe

Christinah61 profile image
Christinah61 in reply to Kazbe

Thank you Kazbe for your advice Good Luck to you xx

shaws profile image
shawsAdministrator in reply to Christinah61

It has been suggested by research that if on a T4/T3 combination, that a 3:1 or 4:1 dose has proven to improve symptoms.

Christinah61 profile image
Christinah61 in reply to shaws

Thanks shaws

SeasideSusie profile image
SeasideSusieRemembering

Northstar (Lloyds pharmacy, Waitrose/Sainsburys pharmacies as far as I remember) is Actavis rebranded, as is Almus (Boots). We don't hear too much about adverse effects from this, Teva is the one we hear more about. However, it's all down to the individual and how we react to fillers/excipients. All you can do is try and if it doesn't suit then get a different brand.

Christinah61 profile image
Christinah61 in reply to SeasideSusie

Thank you SS for your reply I have one pharmacy that does ACtavis and one that does Morningside. Good health to you SS.

Kazbe profile image
Kazbe in reply to Christinah61

Just remembered Christinah 61

Brain fog !

I tried Wockhart Levo no fillers but lactose and sucrose that’s worth a try and Boots pharmacy ordered it in for me :)

but I’m lactose intolerant , I’m back on Mercury Pharma which does have fillers but it suits me best I’ve tried them all it’s worth a try 😀

Good luck

Kazbe

Christinah61 profile image
Christinah61 in reply to Kazbe

Thanks Kaz

Venicefan profile image
Venicefan

Hi. Have you thought about trying a different brand of NDT? This is a link to Stop the Thyroid Madness info page about brands of NDT and it actually refers to there being a problem specifically with Naturethroid.

stopthethyroidmadness.com/a...

I take Thyroid S and feel very well on it.

Christinah61 profile image
Christinah61

Thanks maggie i will read it

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