I can't tell you what a lifeline this forum has been for me. I have followed all of the advice previously given and am no longer on my knees, for that I will be eternally grateful.
Just to recap.... September 2016 I was desperate. Brain fog, tripping on words, pain in arms and legs in bed was a nightmare and my anxiety levels were sky high. Doc increased Levo from 75mcg to 125mcg and said he'd refer me to Endo (think that was just to shut me up as he wouldn't discuss my low B12, Ferritin, etc... as he considered them all normal despite my symptom evidence).
So started 125mcg of Levo and became gluten free too, still taking Levo an hour before breakfast.
Week later I started taking B12 supps (Solgar 5000 with Thorn Basic B complex). Take these straight after breakfast and moved Levo to bedtime, 3hrs after last food and drink.
Week later introduced 1 x Ferrous Fummerate + 1000 Vit C immediately after lunch (did this for 4 weeks then stopped)
About 2-3 weeks after starting all this I hit a wall and felt the worst I'd been all year, but having read that many of you have had the same experience I , I carried on. I can honestly say that after that everything went uphill, the fog lifted, I feel slimmer (may not look it!) but I feel it, I occasionally lose a lb in weight (which I'm sure is because of relooking at my diet and removing the rubbish). My bedtime pain has gone (this was massive to me, I feared bedtime!!!). My anxiety (I've always been a worrier) eased, although this has now returned following my mother's diagnosis of Alzeimers (think positive, think positive!) That Autoimmune series has been an eye-opener, thank you to the person on here that bought that series to our attention...the whole world should see it.
Anyway, I digress....
Last week I had a fresh batch of bloods done, Intrinsic Factor (yes I stopped my B12 a week beforehand), Folate, Ferritin, B12, TSH, FreeT4 and CRP.
My bloodtest was at 8.30am on the Tuesday, so the last Levo I took was on Sunday night (not sure if this 'skewed' my TSH level which was written in a BOLD print with a * beside it)
Results... Nov 2016
TSH 0.12 (0.35-5.5)
Free T4 17.2 (10-19.8)
CRP <4 (0-5)
Serum B12 830 (211-911)
Ferritin 124 (10-291)
Folate still awaiting result
Intrinsic Factor still awaiting result (not sure why there's a delay with these!?)
Apart from my Alzeimers anxiety I feel 'great', (touching wood, fingers crossed, lucky black cat, etc, etc...). I wonder if my TSH (being written in bold with a *) is going to be considered too low and would my Levo timing before my bloodtest have skewed that result?
As always, thank you for any advice. This site is saving lives!!! X