Im hypothyroid on 20mcg of T3. Also have PA and CFS and low IGF1. And just getting over relapse with flu and pleurisy which has completely knocked me off my feet. Pretty sure I had/have overgrowth of candida as Id broken out with everything, angular chelitis around mouth, thrush, eczema and have really felt Its been a slog for around 6 months plus. Now Ive come to a halt and off work and have to think about going part time. Somewhat better than when I was bed bound for 2 weeks, but sleep is horrendous even though Im exhausted. Have tried melatonin which made it worse. Nothing seems to help. Restless legs, hot feet. Body temperature out of control - cannot tolerate heat at all. When I do get to sleep I have horrendous nightmares and wake up in a cold sweat and my little old ticker going mad. (and usually its about being chased) !!
Can anyone shed any light please on what is happening
Thank you .
Written by
cherub61
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Have they tested you for Adult Growth Hormone Deficiency? Low IGF-1 can be the first indicator of this, which may mean that you have a Pituitary problem. CFS and AGHD symptoms are very similar. I have had all your symptoms and was told I had CFS for 14years. I was recently diagnosed with severe Growth Hormone Deficiency due to head Injury. I am now 60 and on growth hormone daily injections.
Your cortisol levels are often out of whack due to the body trying to compensate for hormone imbalances.
Yes funny you should say that as I do have a very low igf1. Sometimes as low as 56 (range about 90-250). They reluctantly did the stimulation cortisol thing about 4-5 years ago and they said it was normal. Did your cortisol go high on a night time ??
Yes I had problems with high cortisol for a long time...used to be awake all night and I mean wide awake up and about doing stuff. Now on the growth hormone cortisol has come to within normal range.
No my IGF-1 was normal...but it is affected by other things such as high protein diet...which I was on at the time of testing!
Yes i have had hypothyroidism since 2008.
I was diagnosed with severe CFS in 2006 that means housebound and bedridden for 90% so yes I was beyond absolutely knackered!lol
The diagnostic proof was I failed the glucagon Stimulation Test and the Insulin Tolerance Test...which showed that I am severe growth hormone deficient. As I failed 2 tests I was then able to get growth hormone treatment on NHS.
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