Finally, a diagnosis after 30years of worsening Hypothyroid symptoms. Initially, treatment with NDT alone, then T3 was added. Whilst undiagnosed and untreated I was progressively becoming seriously ill and unable to function, with treatment I got my life back. Slowly over time the myriad of symptoms have either improved or resolved completely.
It is now 10 years or so since the NHS provided its support with prescriptions of ERFA Thyroid (NDT) and T3 or Liiothyronine; as I don't convert T4. I have thought myself incredibly lucky and ridiculously grateful for these NHS prescriptions; why should I but anyway?
My worst fear has come true. I've just received notice from my GP's surgery, that the CCG have instructed them to stop prescribing NDT (ERFA Thyroid), because 'it is ineffective'. Thyroxine is the only alternative option the CCG are willing to prescribe. Regarding T3, this, they say, can only now be prescribed by an Endocrinologist.
I will jump through the necessary hoops in the hope I can get T3 on NHS prescription. Regarding NDT it seems there is no hope and that the drug companies have finally got their way.
Has anyone else been affected in this way and how have you resolved the problem? Does anyone have details of how to get hold of NDT and or T3. I am happy to have private communications regarding this matter. I have been a member of this group for a long time, generally offering support to others but on this occasion I am hoping you can offer me help. I would hate to be forced to endure that Zombie state again.