No more T3 on prescription?

[juliat]

The question you need to answer is...WHAT YOU GONNA DO ABOUT IT?

Accept it's a done deal and you are just a victim?

Trouble with that is.....

It ain't gonna change unless we as individuals decide to act. 

The Black List is from NHS ( not CCG) Docs Cannot prescribe what's on here - fair enough, long as I can still get my whiskey

The 'Traffic light drugs list' - Red, Amber, Green is from CCG formularly it is 'guidance' which they 'expect' GP's and Endos to comply with. MANY DO NOT WANT TO as they know it will harm patients but 'feel' their hands are tied.

We need to

EMPATHISE with them about that - BUT TELL THEM YOU DO NOT ACCEPT IT

EDUCATE THEM about T3, NDT and flag up the hard to treat hypo Thyroid patients that need more than T4 and the options available. ( well covered in BTA 2015 statement on treating primary hypothyroidism if you read it thoroughly)

HAMMER HOME the huge potential cost to the NHS and to the COUNTRY of tests, treatment and disability benefits which will undoubtable occur from people returning to or NOT RECOVERING FROM Hypo Thyroid without the appropriate treatment FOR THEM. Not to mention the personal suffering of patients and their families...and depression etc

REMIND THEM that they have a responsibility in law to care for our clinical needs

REASSURE THEM that they can take the responsibility for treatment ( with an endo or even without one ).....or

BECAUSE WE can be told about any supposed potential 'risks' and accept that risk for ourselves ( section 12 BTA 2015 statement on treating primary hypothyroidism)

HOLD THEM ACCOUNTABLE FOR OUR PRIMARY CARE

Be helpful and nice about it

IF WE KEEP ROLLING OVER and accepting it,  IT WILL ONLY COMPOUND THE SITUATION.

IF ENOUGH GP'S STAND UP TO THE CCG'S BECAUSE THEY WANT TO SLEEP AT NIGHT AND DO A DECENT JOB AND BECAUSE THEY DON'T WANT TO BE SUED - IT WILL MAKE A DIFFERENCE.

so?  what you gonna do?

kind regards

Juliat

Juliat

[shaws Administrator]

If members become paid up Members of Thyroiduk.org.uk that means there's a 'head' of the Organisation and TUK has been there - done that - so are slowly stepping forward and know more than most of us the ups/downs they've had in the past.

thyroiduk.org.uk/tuk/

[juliat in reply to shaws]

Thanks for reminder!

done!

[Marz]

....and show them Dr Malcolm Kendricks blog on Treating Thyroid Patients like children.

drmalcolmkendrick.org/2015/...

[Katepots]

I'm up for a March and a protest on Downing Street. We would need hundreds of us though to make an impact, no niceties any more. We need to make a noise!!

We'd need some of you clever ones if we got to be heard.

Who's up for it?

[juliat in reply to Katepots]

count me in

[juliat]

We must make it 'publicity gold'

Not just a few odd balls with placards....

Something with 'legs' and 'pow' that will run and run

where do you live?

[marigold22]

Count me in. Outside No.10?

[Pookie50]

At last, my MP is writing to the CCG on my behalf! I gave her a file full of information in January that I got back yesterday. I'll let you know how I get on. Thing is, I do like my NDT and doing my own thing after so many years of being held to ransom with TSH blood tests and GP's who don't have a clue about hypothyroidism.

[juliat in reply to Pookie50]

Hi

sounds positive,

Make sure they address the exact issues that are relevant.

that is those upon which a decison is based.

They don't consider 'life stories' relevant.

good luck keep me posted please

XX juliat

[Nanaedake in reply to Pookie50]

Do you think your file would be helpful for me to put a letter together to my MP? I am fed up of being unwell for last 10 years and GP trying to be helpful but tied up with red tape by CCG.

[Pookie50 in reply to Nanaedake]

My file is personal to me as it contains copies of letters from my Endo recommending that I need T3, copy of results from DIO2 test indicating impaired conversion fro T4 to T3, and various research papers showing that some people need the additon of T3.

Before going to my MP I had written a couple of times to the CCG explaining my case. They were just not interested. I still haven't got anywhere and this has been going on since November 2014. I'm not holding out too much hope with the MP either. Meanwhile I am happy on NDT.

You could ask your GP to write to the CCG, but other than that you could try NDT. Some GP's are happy to monitor you if you buy your own NDT. There is a great deal of information available on how to switch to NDT particularly on the Stop The Thyroid Madness website.

I am sorry I can't be more help.