We are all in this, trying to find what to take, what not to consume, wanting a cure, told there isn't one or read it may be possible to get some kind of remission.
You recall I, as some, can't take the meds, severe side effects. I also had several useless doctors so learned a lot from this site and internet.
I did an iodine test which showed deficient.
Having high TPOab we presumed auto immune.
"Don't take iodine when auto immune" (altho I have had some supplements with it in and later iodinised salt instead...time goes on)...
"Some Hashi patients find they reverse the Hashi (auto immune) when they restrict Iodine in diet / don't take supplements"
"The body needs Iodine"...
WILL SOMEONE SORT THIS OUT PLEASE!
If the body needs Iodine and so does thyroid - how they hell can it work if you restrict it?
This may appear a rant, but you see, I am trying to cure self - NO COMMENTS ON THAT - BEEN THROUGH MOST!!
I have SEVERE anxiety, DISABLING AGORAPHOBIA, panic....
I have had for over twenty years.
Going back to that time, I wasn't tested for Thyroid nor auto immune, was given nasty meds - side effects (no need to say more) anyhow I LATER took St Johns Wort which helped me get walking (as loss of balance and agoraphobia now means housebound). ANYHOW... so in the past (without knowing about thyroid or auto immune) SJW helped a bit!
I now read anxiety / agoraphobia linked to lack of T3...
Then I read anxiety / agoraphobia etc is caused by high TSH
I was just about to trial (get up the nerve) to take SJW over the winter, but rather not take anything really - but so desperate to be able to go out and about and know SJW helped in the past....
IT SAYS ON HERE AND INTERNET DONT TAKE SJW with hypothyroid / Hashi as it raises TSH...oh for heavens sake... and I don't have room for it to go up....!!
It was a small trial 15 years back researchers did, not seen newer and was 'done by phone'... errrrr pardon?! It had low test value but determined TSH went up...
It doesn't say what happens if not on Levo...did they mean on it or off it? Because if on it (which I am not any more) then it rids thyroxine out of body faster allegedly... so will it harm in my condition when not taking - elsewhere it says affects enzymes...or liver... bla bla...
I fear taking it could weaken me more and I am already bad... but actually was doing quite well when came off T4 and Docs didn't want to give me T3 due to weird heart effects... (another worry with SJW possibly too)... they of course refused point blank on glandulars... I am cutting story short here so no lengthy discussion on these points..
I just need to know if anyone has had the OK with St Johns Wort without it affecting TSH....please?
If you are also lacking Iodine and have Hashi and have got to bottom of whether Iodine does or does not cause damage....and were you advised to take it and does it matter which form -?
I know about balancing selenium etc...it is just I kind of ditched the GPs as only interested in PHARMA I think... sorry!
A natural doc told me Colostrum & Nutrithyroid but again I read up and changed mind before trying (old posts on it.. so not going into again)....
I will likely do as I feel... but in turmoil this moment, so specific answers would be good for us all -
Have you all written to any research department to demand they get to bottom of matters? We all post online but when will this change (GOV MONEY ASIDE)...