Thyroid s: Can anyone tell me how to convert back... - Thyroid UK

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Thyroid s

lizcosgrove profile image
29 Replies

Can anyone tell me how to convert back to levo. Im on 2grains thyroid s. And have been up as high as 4. Just feel sick and miserable. Thanks in advance.

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lizcosgrove profile image
lizcosgrove
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29 Replies
humanbean profile image
humanbean

I grain of NDT is approximately equivalent to 65mcg of Levo.

lizcosgrove profile image
lizcosgrove

God i thought 1tabket was 38 levo andabout19t3. I reduced 2weeks ago from 2 1/2 tablets. Do you think it would be ok to reduce again so soon. Then go back to levo. Thanks for your help.

humanbean profile image
humanbean in reply tolizcosgrove

One tablet of (60mg or 65mg or 1 grain) NDT is often stated to be equivalent to 38mcg T4 + 9mcg T3.

9mcg T3 is equivalent to about 27mcg T4, making a total of

38 + 27 = 65mcg T4.

I'm sorry, I can't tell from your description what you've been doing and why, so I can't help with how you should change from one to the other.

What level of levo were you on before you started on the Thyroid-S?

lizcosgrove profile image
lizcosgrove in reply tohumanbean

75-100alternate days

humanbean profile image
humanbean in reply tolizcosgrove

I think you were overdosing yourself with the Thyroid-S. NDT should be increased slowly so that people don't miss their sweet spot (which is easily done).

Some links on how NDT should be introduced - notice that opinions on how to do it vary quite a bit :

stopthethyroidmadness.com/n...

(Read the section on How do I move from taking T4-only to NDT?)

tpauk.com/main/article/how-...

thyrophoenix.com/adjusting_...

If you want to go back to Levo I would suggest dropping from 2 tablets down to 1 and a half for a week, then just drop the NDT altogether and switch to Levo. I think however you do it you are going to feel grim, but I don't know a way to avoid it, sorry.

shaws profile image
shawsAdministrator

NDT (Nature-throid in particular ) states the effect of 1 gr is 100mcg levo but it might have a different effect on different people.

lizcosgrove profile image
lizcosgrove in reply toshaws

I 've been trying thyroid s. Dont know where to get nature thyroid. Or if I'd be able to afford it. I went as high as 4tablets of thyroid s. And back down to 2. Cfeel absolutely lousy. Tge pains in my knees is terrible. Bloated and exhausted.

shaws profile image
shawsAdministrator in reply tolizcosgrove

I am sorry ThyroidS hasn't worked for you. How did you begin this method and what dose of levo were you on? How long have you taken it?

TSH110 profile image
TSH110 in reply tolizcosgrove

I take thyroid S and for me 1/4 grain is about equivalent to 25mcg Levo. I used the TPAU guides to swap from Levo to ThyroidS and bar one rocky increase it all went really well. I take 2.5 grains now but at first I only needed 1.25 grains. I was on 120/125 Levo 3/4 days a week. 125 I felt a tad hyper 120 I felt half alive but never found any sweet spot on it.

lizcosgrove profile image
lizcosgrove

I was on75-!100 alternate days. I have been taking it about 5months. I've been back on 2 tablets for about 2 weeks. Dobt know if i shoukd reduce it now or go straight back to levo.

lizcosgrove profile image
lizcosgrove

Thanks to you all for tour replies. Ii have just read the label on the thyroid s bottle. 1tablet =60mg. Dont know where my head has been at. I might give it another week on 2 tablets the n reduce to 1 1/2. My friend says <online shop> heve withdrawn thyroid s, after a newspaper report ss ying they were unsafe. So still dithering about what to do. Thank you all.

helvella profile image
helvellaAdministrator in reply tolizcosgrove

Are you sure you are interpreting that correctly?

What that is saying is that each tablet contains one grain of desiccated thyroid powder. And that the weight of one grain is 60 milligrams.

It is NOT saying anything at all about levothyroxine or equivalent dosages. Levothyroxine dosages are usually in micrograms (mcg) not milligrams. (Except in the USA.)

lucylocks profile image
lucylocks in reply tohelvella

Hi helvella,

I am also thinking of changing back to levo. I have been taking 1.5 grains of W.P. Thyroid and cannot get beyond this dose. I have only found a slight improvement over levo. and this only lasted about three weeks.

Before starting NDT I was taking 125mcg. levo. and my Doctor reduced to 100mcg. because of low TSH. She has now had a change of heart after speaking to an endo. and says I can now go back to 125mcg. but she knows nothing about NDT and cannot advise me on how to change back

Any advice would be appreciated.

lizcosgrove profile image
lizcosgrove in reply tohelvella

It says on the bottle. Thyroid extract 60mg

Indication thyroid deficiency agent. Dosage 30-250mg dailyor as directed by phiysician. The report was in tge sun last week. About imported drugs. And aapparently amazon have withdrawn thyroid s from sale.

humanbean profile image
humanbean in reply tolizcosgrove

Thanks for the heads up about the Sun article.

TSH110 profile image
TSH110 in reply tohelvella

According to Stop The Thyroid Madness each 60mg ThyroidS tablet contains:

"approximately 38 mcg Levothyroxine (T4) and 9 mcg Liothyronine (T3); Source of extract: Porcine"

humanbean profile image
humanbean in reply tolizcosgrove

I'm curious about the newspaper report saying Thyroid-S is unsafe. Can you tell us more? Link us to the report?

Pharmaceutical companies have been trying to get rid of NDT for years, so I would be very dubious about the source of any information saying that Thyroid-S is unsafe.

TSH110 profile image
TSH110 in reply tohumanbean

@humanbean

This is the link

healthunlocked.com/thyroidu...

I have complained to the sun - no reply, Amazon - no reply and Dr Sarah Wollaston who remarkably did reply and wanted to pass on my comments to my MP. I took the opportunity to thank her for responding despite my not being her constituent and gave her another earful about the scandalous lack of treatment options on offer to people with hypothyroidism and the patronising attitude of the College of Endocrinologists especially the Weetman somatic (?) disorder ie. remaining symptoms are all in the mind clap trap and a link to the latest research on the value of T3.

humanbean profile image
humanbean in reply toTSH110

How embarrassing! I wrote the post you linked to. So I was asking you to link to a post I wrote myself. My memory is appalling!

TSH110 profile image
TSH110 in reply tohumanbean

humanbean LOL I didn't even notice that you originated it!

My head seems to be compartmentalised and lacking in meaningful cross over so helpful connections are not always made - bonkers eh?

lucylocks profile image
lucylocks

Hi

I am also thinking of going back to levo. I have been taking W.P. Thyroid for six months but can only get up to 1.5 grains. I cannot say I have felt any better on them apart from a few weeks I felt a slight improvement, but now feel slightly worse.

My T4 is now below range but T3 is quite good so I think going back to levo. and adding some T3 maybe the way to go so I can get the ratio right.

I asked a few weeks ago how to convert back on the forum and someone said if converting back to levo. and T3 than take the equivalent of what's in the NDT. but did not really get any advice on how just to go back to levo. only.

Sorry cannot be much help.

TSH110 profile image
TSH110 in reply tolucylocks

@lucylocks Just do the opposite of the TPAU régimen for conversion from Levo to NDT

tpauk.com/main/article/how-...

Given earlier in this post

TSH110 profile image
TSH110

I'd reduce by 1/4 grain and add 25mcg levo and gradually work up the levo and down with the NDT in that manner until you are back to a full levo dose. Some say it is ok to do a direct swap in one go.

lucylocks profile image
lucylocks in reply toTSH110

Many thanks TSH110,

I am still taking the W.P. Thyroid and recently ordered some more. I have also ordered some T3 and the T3 has just arrived, posted through my letter box.

I have also had a card posted through the letter box for the NDT saying I need to pay £22.51 customs charge ( I am sure I did not pay this much last time)

I really do not mind paying if I had a great improvement on the NDT but even though I have found some improvement it has not been so much as I was hoping for.

My thought now is like you suggest, to gradually reduce the NDT whilst adding in the levo. but I have purchased the T3 in case I feel I need it to add to the levo.

I feel the ratio in NDT is not quite right for me.

My blood test show T3 in top quarter of range but T4 under range.

My 24 hour urine test whilst on 100mcg. levo. showed I was converting reasonably well but I was not taking enough of levo.

I am hoping I can take levo. again and add T3 if needed.

TSH110 profile image
TSH110 in reply tolucylocks

I've been lucky and never been nobbled for NDT customs charges plus it seems to suit me really well as if my body is able to balance it all so I get what I need even if the ratio is not identical to what a human thyroid makes. I just go on how I feel, some numbers would be interesting but as I feel about as normal as I did before becoming really poorly (and in fact I probably feel better in many ways because I think I was going downhill with hypothyroidism for a very long time before it became overt and really horrible and finally treated as I looked into the jaws of death and just escaped them - I must thank Levo for that ) I haven't bothered with any testing and have had no real reason to see my GP since starting on NDT after feeling like I had set up camp at the surgery with a plethora of health problems. I hope you can find a combination hormone replacement therapy dosage that suits you - you have all the options at your disposal so I wish you good luck ☘️☘️☘️ And hope you soon find the sweet spot very soon!

lizcosgrove profile image
lizcosgrove

Im downstairs to 11/2 now.was thinking of trying another kind.but dont know where to get it or the cost.any idea's please.

lucylocks profile image
lucylocks in reply tolizcosgrove

Hi lizcosgrove,

I can let you know by P.M where to purchase W.P. Thyroid and Nature Thyroid but as you can see from my replies above I have only had slight improvement from it. Also they are far more expensive the Thyroid-S and you do have to pay £22.51 customs on top. Let me know if you need the info.

Have you tried levo. plus T3? This is what I am now thinking of doing.

lizcosgrove profile image
lizcosgrove in reply tolucylocks

I would be grateful if you could message me.where to get ndt and t3.thanks for your help.

KateCora profile image
KateCora in reply tolucylocks

I wonder if you could pm me this info? Thanks!

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