Hi , I am struggling a bit here - my history is of a pituitary tumour which was removed 18 yrs ago , leaving me with no pituitary function so I take replacement doses of thyroxine, hydrocortisone, desmopressin, growth hormone and hrt. I was trundling on nicely till just before Xmas when I was diagnosed with a DVT in my calf and was put on warfarin fo 3 months. Subsequently my hrt was stopped overnight. This put all my hormone levels into a spin and I felt truly truly hideous, on top of that I had my first ever attack of cystitis ( I am 53) which seems to have possibly left me with a persistent biofilm infection/ interstitial cystitis. I have really bad pelvic pain. I seem to be struggling in every way. I have recently been allowed to try HRT patches ( they bypass the liver ) and this week I asked them to test my iron levels as a previous lot of bloods came back showing a borderline low haematocrit.
When I phoned up the Drs for the results these are what she gave me:
Ferritin 11. Normal range 14-186
Iron 9 . Normal range 11-30
There was no message to go back in, so I made myself an appointment . When I saw the Dr he just looked at me and said " what do you want to do"? I' m thinking " well youre the Dr -you tell me!" Anyway I came out with ferrous fumearate tabs210 mg 3 x daily , no insructions on retesting or what levels in the blood we are aiming for or why my levels have got so low in the first place.
From what I have read on this site iron is needed to convert t4 to t3 , so I am assuming some of my symptoms are caused by being hypo. How long do you think I will need to be taking the iron before I see a difference? Also any advice on what other bloods I should be asking for or supplements I should be taking?