Thyroid UK
84,407 members99,412 posts

Gluten free help

Hi. Thanks for your advice about going gluten free. I decided to follow on Friday last week.

I feel absolutely awful. I'm exhausted. I can't keep my eyes open. I'm down and depressed and I'm having trouble falling asleep at night. Tearful & shut off.

Is this normal? I'm struggling to take care of my son and relying on my husband to take time off so I can sleep.

Any advice? I'm a mess.

12 Replies
oldestnewest

Sorry to hear you're feeling so bad. I've read that withdrawal is worst between days 2-4 and you should then start to feel better. Make sure you're eating well and drinking lots of water. Tailing off instead of going 'cold turkey' may make the transition easier. Hope you feel better soon.

nutritionaltherapy.com/the-...

1 like
Reply

Thank you so much!

Reply

When my husband first went gluten free, he felt absolutely awful, ill and exhausted, so much so that he couldn't cycle the 7 miles to work that he had been doing for years. But then by the 10th day, he suddenly realised that he felt better than he had in years and had energy that he hadn't realised had been missing. Keep going, hopefully you will see light at the end of the tunnel soon. Clemmie

1 like
Reply

Thank you so much Clemmie, this is hugely reassuring!

1 like
Reply

Have you had your vitamin D, b12, folate and ferratin levels checked. They need to at higher end of normal range.

Antibodies/gluten intolerance can badly affect uptake of nutrients from your gut.

Hashimoto's patients often have very poor levels.

If Gp won't agree to check then can get done privately via Thyroid Uk

thyroiduk.org.uk/tuk/testin...

Vitamin C may help too

Reply

Hi Slowdragon.

I was supplementing D & B12 with sprays both in higher end in March. Haven't had them checked since but have just stared supplementing again.

Folate ok.

Feritin is sitting around 25. Have just started ferrous sulphate bought myself as gp said its within range. I think the low feritin is not helping at all.

My worry is feeling worse since coming off gluten and if I can expect this to be a short term withdrawal thing.

Hoping so!

Reply

Ferritin is really low, that will definitely cause fatigue and other symptoms.

Reply

just wondering if you're feeling any better?

Reply

Thank you, that's so kind of you to ask. I am. I'm feeling loads better. I was running on 10/20% before, now I'm on 50% at least. I've got a stinker of a cold that would normally floor me but I'm doing ok.

It's incredible how much difference it makes just giving up gluten!

3 likes
Reply

That's great, I was a bit worried about you.

Reply

Thank you x

Reply

how are you doing?

Reply

You may also like...