Gluten free: Been gluten free by choice since... - Thyroid UK

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Gluten free

20 Replies

Been gluten free by choice since last March . I understand gluten takes a while to get out of your system but today probably because I was cold and craving carbs I ate bread . What makes it worse was it was my sons cheesy bread cake ..

I feel bad

A bit sluggish

Serves me right really

How long would this take to get out of my system ??

20 Replies
GrowingVeg profile image
GrowingVeg

Hi Reiki master, you've done really well to give up gluten! It's OK to have a minor relapse, and if your going to go for it, might as well do it properly with the best gloupyiest cheesy bread cake you can find, even if it belongs to your son!No idea how long it will take to detox, I'm still quite new to all this. I'm sure someone will be along to offer their experience.

in reply to GrowingVeg

😊 Thank you 😊

Cooper27 profile image
Cooper27

It really is an individual thing for all of us, and this will at least be a useful experience for you to learn what your normal is.

My partner is coeliac, and it takes a week for him to feel well again.

I personally take a few weeks, although when I did a 6 week gluten challenge to be tested for coeliac disease myself, it was a few months for the symptoms to pass after I stopped gluten again and I had occasional flares 7 months on.

I know that doesn't help much! You can take activated charcoal to help absorb some of the gluten, which will help you feel a bit better again.

nellie237 profile image
nellie237 in reply to Cooper27

You did a gluten challenge - that was brave. I recently watched a short you tube video of Caroline Quinten doing a gluten challenge - you can physically see the colour drain with her 1st slices of toast in however long.

in reply to nellie237

Have to look at that one thanks 😊

Cooper27 profile image
Cooper27 in reply to nellie237

It was interesting for me too. You could track how long it had been since I quit by my fingernails - the colour of pink changed, and you could see the change progressing along the nail as the healthy nail grew out. I have to repeat the challenge, so this time I'm going to photograph it weekly to document it :)

nellie237 profile image
nellie237 in reply to Cooper27

I clicked on this and said out loud "Oh No" that is just awful - again - I feel for you and hope you get answers this time. I'm sure you know the advice is to start with a very small amount and increase slowly - so maybe 1/2 a slice of toast on the 1st day. I think it is worth recording - good idea. There is still so, so much that they don't know.

There is a part of me that would obviously like to know how much damage I've got, but they've got to get the biopsy just right - so I'm still considering whether I want to push it on age. I think I'm classic undiagnosed for probably 13 years. My gut is definitely getting better it doesn't feel bruised now -the rest of me - fatigue, dementia symptoms etc not so much. Still I'm only 2 months into GF and 4 weeks of Iron etc - so quite a way to go.

Cooper27 profile image
Cooper27 in reply to nellie237

It takes a long time for antibodies to normalise again, my partner started with >128 (over the range of testing), he took 9 months to get a result within normal range again. He said it was about 6 months before he felt the symptoms getting better.

nellie237 profile image
nellie237 in reply to Cooper27

Does your partner have any idea how long he might have been ill before diagnosis?

in reply to Cooper27

My nails are so bad . They’ve never recovered 😫

Cooper27 profile image
Cooper27 in reply to

I take a hair skin and nails supplement (just buy a bottle once a year, I don't take it all the time) and that might help you! I had to wait for a couple of full grow-outs before my nails toughened up again.

in reply to Cooper27

Does it contain Biotin and silica 😊

Cooper27 profile image
Cooper27 in reply to

Yes, unfortunately it does.

nellie237 profile image
nellie237 in reply to

My nails have always been brittle - past few years developed vertical ridges, which I've been trying to buff out - I learned recently that this would be the iron deficiency -I'd thought that it was just getting older. If I do anything that means using thumb pressure they split down the sides most often where still attached to skin - so I end up with a chunk missing in corners because I can't cut it off all the way across.

Cooper27 profile image
Cooper27 in reply to nellie237

It's a hypo thing too - my mum's nails did this all the time. Mine are just very weak and the top layers peel off.

I've always had very fine hair and thin nails, I suspect my mum was hypo while pregnant with me, and just didn't have enough to spare to give my nails/hair a healthy start in life, but with my thyroid issues it all grew a lot worse.

nellie237 profile image
nellie237 in reply to Cooper27

I've always had fine hair too - not much grey though which is a bonus. My daughter K has her father's hair - fine, lots of it, but premature greying (He's got Irish blood). K was the 1st member on both sides to be dx with an auto-immune disease (type 1 diabetes age 10). 10 yrs later in 2007 I was diagnosed Hashi's. K Hashi's a couple of years ago - now me again with coeliac. One of my niece's dx coeliac a few years ago.

I got a call to book my dexa scan appointment today for 9th March - I expected to wait months for this. I think the GP that I spoke to must have pushed for this for me bless him.

SlowDragon profile image
SlowDragonAdministrator

Probably a week to get worst of symptoms out your system

nellie237 profile image
nellie237

Interesting question. "Gluten doesn't stay in your body and hide. It goes through the GI system just like any other food - so it probably comes out the other side in 24-48hrs" Coeliac.com

Noelnoel profile image
Noelnoel

But the inflammation and irritation it causes can take time to subside. The length of time is different for everyone but be sure, if you’re gluten intolerant or sensitive, every time we eat it, damage is done. Again for some it’s minor and for others less so. As to whether the damage is permanent, I have no idea but I suppose, if we continue to eat it or ignore the symptoms, it may take longer to heal

nellie237 profile image
nellie237

Noelnoel If you are gluten intolerant or sensitive it will not cause damage - pain and real discomfort certainly. Having said that the testing isn't perfect so......

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