NDT - help!

I have hypothyroidism as a result of a pituitary tumour. I am currently on 100mcg of levothyroxine but am feeling really unwell. In fact, I can't remember the last time I actually felt 'normal'. I take loads of other hormones too - including cortisol. My Endo and GP constantly fob me off and say my results are in normal range. They are reluctant to increase my Levo dose but will automatically increase my antidepressants almost wily nily. Most recent blood tests were: T4 11.9 and T3 4.3. My TSH was 0.26 but because of the pituitary damage this is kind of irrelevant.

My question: where can I safely purchase NDT such as nature thyroid? I need to do something as I'm getting nowhere with my doctors. Many thanks.

6 Replies

  • Welcome to the forum, In2thegroove.

    Members will respond via private messages as sources to obtain prescription only meds can't be posted on the forum.

    To access private messages click on the red alert above your username and click on Messages, or click on the email notification you are sent.

  • Thank you.

  • Once again a person under-medicated? Free T4 could be higher. Remember the well known instructions by dr Toft: "The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range – 0.2-0.5mU/l. In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l. Most patients will feel well in that circumstance." (If not Toft even increases dose and T4free, keeping watch on T3free. Many others prefer adding T3)

  • Got my thyroid medication on <a web site>, and plenty of places sell it, just google and search. As for if it is safe am sure they are as safe as the one the doctor gives you. If it makes you feel so awful you have nothing to lose by adding to it or changing it.

    [ Edited by admin to remove reference to a specific website. Please read and abide by the forum guidelines, number 23 in this case. ]

  • Amazon sellers are offering thyroid glandulars from bovine sources. I am taking some and so far feel okay.

  • Thanks so much for the advice. I'm going to try NP thyroid, which I've now ordered. Being on 100mcg of levo, do you think I should start straight away on 1.5 grain of NP?

You may also like...