Hi everyone, I haven't posted here before but you all seem so knowledgeable and friendly and I don't know what to do. I have been ill for over ten years and during that time have been diagnosed with chronic fatigue, IBS, BPPV but by and large have just been sent away. I started losing masses of hair in the summer so went back to my GP who finally tested my thyroid. The levels all came back normal and I was told I was fine just needed to get more sleep and lose some weight. (I was offered a shampoo for my hair!) I did some research and found that my levels were only just within their range (TSH 4.8 and T4 8.9) (ferritin 15) and that an awful lot of my problems seemed to be symptoms of hypothyroidism. I went back but he simply said I wasn't ill enough for him to treat or diagnose me. He said he thought I did have thyroid problems ( there is also a family history) but that he could do nothing about it. So I saw a private doctor who felt my thyroid (I have a large lump on my neck), did blood tests and diagnosed auto immune hypothyroidism with insulin resistance, oestrogen dominance and severely low levels of vitamin d and e among some other deficiencies. She prescribed levothyroxine and supplements. I started on 50g but didn't feel any better so she increased it to 100g and I started getting palpitations. Having read up on it I asked if she could change me to NDT and so she prescribed me ERFA thyroid which I have now been taking for about three months. (1 grain) I still don't feel any better at all but I do still get palpitations. She has said if I don't feel any better then stop taking the ERFA so I really don't know what to do and I'm desperate to start to feel well again. I have read that people change brands - does that really make a difference? I went back to my GP with the blood test results I had done privately and he refused to even look at them but did order an ultrasound because of the lump. That apparently showed both sides enlarged and nodular which he said was normal???!!! I feel like I'm stumbling around in the dark here and don't know what to do next. If anyone has read this far thank you so much and if anyone has any advice I would be so so grateful. Does anyone ever feel better with this horrid illness? Sorry for the long post - just really need some help and encouragement. X
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