Your comments please on my most recent TSH, Fre... - Thyroid UK

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Your comments please on my most recent TSH, Free T4 and Free T3

rjb112 profile image
16 Replies

October 25, 2021 bloodwork:

TSH0.66 uIU/mL (reference range: 0.55-4.78)

FREE T-4 1.4 ng/dL (reference range: 0.67-1.52)

FREE T3 3.0 pg/mL (reference range: 2.3-4.2)

I'm taking 87.5 ug Levothyroxine (100 ug one day followed by 75 ug the next day)

I know my primary care MD will not let my TSH go below this reference range of 0.55 without insisting on a lower dose of levothyroxine. She also would not like it very much if Free T4 went above this reference range of 1.52. My guess is that both of those would happen if I increased the dose of levothyroxine from 87.5 ug to 100 ug.

In that case, I would not be able to convince her that a TSH below reference range is fine and a Free T4 above reference range is fine, as long as the Free T3 value is within range.

It's not worth the risk. It's been a slow but successful process of convincing my primary care MD to move up in dose.

This may be as good as I'm going to get.

Any opinions?

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16 Replies
greygoose profile image
greygoose

Change doctors? Doctors are there to advise you, not dictate to you. It's your body, and as long as you know the 'possible' risks, it should be your choice whether you have your TSH below range or your FT3 above it. What is important is that you feel well, regardless of whether your GP is happy. It's not her life and she doesn't have to suffer the concequences of under-medication. Well, that's my opinion, for what it's worth. :)

rjb112 profile image
rjb112 in reply togreygoose

Good points greygoose. Thanks.

It would be difficult to find a primary care doc (in the healthcare system that I am in) that would be OK with me having a TSH below the reference range and a free T4 above the reference range.

I'm assuming that would happen if I increased the Levothyroxine dose to 100 ug.

I'm certain the Free T3 would stay within the reference range, but go higher within the range.

greygoose profile image
greygoose in reply torjb112

In that case, the only other solution is to self-treat. Lots of us do for those very reasons.

rjb112 profile image
rjb112 in reply togreygoose

"In that case, the only other solution is to self-treat. Lots of us do for those very reasons."

greygoose, appreciate the details on that. How do you do that, step by step?

What all is involved?

Don't you require a medical doctor to prescribe/order the thyroid medication(s)?

Are you paying for everything on your own, such as the cost of the medications, the cost of labwork/blood tests and whatever other things are involved?

thanks very much greygoose

greygoose profile image
greygoose in reply torjb112

Yes, you would have to pay for both medication and any blood tests you do. But as private blood tests aren't available where I live, I skip that step. And, I buy my hormone on-line. I know my body well enough to know when I'm not taking enough, or too much. Blood tests are only a rough guide, anyway. Not the be-all-and-end-all doctors think they are. You might be interested in this article on blood tests:

The normal range: it is not normal and it is not a range

pmj.bmj.com/content/94/1117...

Might interest your doctor, too!

rjb112 profile image
rjb112 in reply togreygoose

"Yes, you would have to pay for both medication and any blood tests you do. But as private blood tests aren't available where I live, I skip that step. And, I buy my hormone on-line"

greygoose, I don't think I can purchase Levothyroxine without a prescription, online or otherwise.

So how can I do this?

And how do you purchase your "hormone" online without prescription?

greygoose profile image
greygoose in reply torjb112

There are some countries, like Turkey, where a prescription isn't necessary to buy thyroid hormones. Lots of people do it.

m7-cola profile image
m7-cola in reply togreygoose

Yes! Point well made. Pity more people haven’t seen the sense of this.

SeasideSusie profile image
SeasideSusieRemembering

rjb112

How do you feel with those levels?

rjb112 profile image
rjb112 in reply toSeasideSusie

"How do you feel with those levels?"

Dramatically better than I did than when I was only on 50 ug Levothyroxine.

And better than I did than when I was on 75 ug Levothyroxine.

(I only increased to 87.5 ug Levothyroxine in 2021).

I would like to have more energy, but of course I can't say that would happen if I increased to 100 ug.

Alejandrita17 profile image
Alejandrita17 in reply torjb112

Have You considered taking zinc and selenium? A lot of people increase conversion with those supplements (but not all).

rjb112 profile image
rjb112 in reply toAlejandrita17

"Have You considered taking zinc and selenium? A lot of people increase conversion with those supplements (but not all)."

I have been either eating one Brazil nut every other day, or taking a liquid selenium supplement. I have not been supplementing Zinc. Maybe I need to look into that? I guess first I'd like to look into whether I can get enough zinc in the diet, in much the same way that I eat a Brazil nut to get selenium. Do you supplement with both zinc and selenium? How much zinc and how much selenium do you supplement with?

thanks

Robert

rjb112@gmail.com

Alejandrita17 profile image
Alejandrita17 in reply torjb112

I'm a poor convertor myself, so I'm trying to add zinc and selenium by eating pumpkin seeds and brazilian nuts everyday. I also read that FERRITIN is key for good conversion. Let's see what happens.

rjb112 profile image
rjb112 in reply toAlejandrita17

Hi Alejandrita17,

"I'm a poor convertor myself, so I'm trying to add zinc and selenium by eating pumpkin seeds and brazilian nuts everyday. I also read that FERRITIN is key for good conversion. Let's see what happens."

Today I started again using a website called cronometer.com

You weigh or measure the foods that you eat, and enter them into the website.

The website tells you exactly how much of each nutrient you consumed, e.g., how much zinc, how much selenium, etc., and compares it with the daily requirement of that nutrient.

It's very helpful. I don't know if I am meeting the daily requirement for zinc, for example. But after entering my daily food for a week or two, I should have a very good idea.

You can also experiment by putting some sample foods or sample menus into the website, to see how much of certain nutrients a specific food has.

Robert

Alejandrita17 profile image
Alejandrita17 in reply torjb112

Thanks!!!

rjb112 profile image
rjb112 in reply toAlejandrita17

You're welcome Alejandrita17.I've been using cronometer.com a lot these past 2 days and it's very helpful.

Have a good rest of the weekend

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