I have just booked myself a private endo appointment for next week & I am starting to doubt myself so was just looking for a bit of moral support really that I'm doing the right thing!
I am hypothyroid and on 100mg of Levothyroxine, which I have been taking for just over a year now. It was a struggle to get the diagnosis tbh and at first I felt loads better but now I'm not so sure. My first couple of blood tests after starting on it showed my TSH as down under 1, ideal from what I understand. One of the main symptoms I went originally for was back/neck pain & after loads of pointless Physio they finally sent me for an X-ray & diagnosed mild scoliosis & arthritis in my neck. I thought that the symptoms for this might improve with my thyroid being under control but they never have & if anything feel worse lately (along with some other symptoms returning) so I returned to my GP who was very dismissive (again!), pretty much saying that I just have to live with it, but offered me more Physio & pain killers (which I don't really want) & also tested my vitamin d & thyroid again. My vitamin d level was previously very low & I had been taking supplements.
So my results showed that vitamin d was high so I could stop taking those but my TSH is back up to 4.7. I figured that as I was feeling better earlier this year with it lower, the dr might be sympathetic to a slight increase in my dosage. But no, I just got the "you're within normal ranges" speech 😞 Whatever happened to treating the patients symptoms?
So now I'm taking the plunge & going to see an endo privately, which I will have to self fund as my insurance won't cover me without a gp referral, & I'm starting to worry that I'll get the same treatment & it'll be a massive waste of time & money?!
I'm doing the right thing tho right...?!