Please let me know what you think of my endo re: Symptoms and Vitamin D

[thyroidmom84]

Sorry, I’m in need of a laugh. So I asked me endo if People with Hashi’s could experience hyper symptoms like sweating or hot flashes as a result of their condition and she said- “So the symptoms you are having are not typical- may not be related but there are also plenty of people whose symptoms are atypical.” Thanks, I guess. To me it makes sense since the thyroid is our temperature regulator but what do I know. I know another thing it could be is my anxiety but my TSH is over 6 right now so I want to think they are connected.

Next up was vitamin D- my most recent labs showed my vitamin D had increased with supplementation but still low at 34.6 with reference of 30-100. I asked if she thought I needed more supplementation and she said no, adding “Most of the studies show that D>30 is optimal but there really isn’t evidence for further benefits from higher levels.” Does anyone happen to have any medical literature I can give her that suggests optimal levels of Vitamin D being on the higher end of the range?

Thanks

[SlowDragon Administrator]

Presumably your vitamin D in measured in ng/ml

Here in UK vitamin D is measured in nmol

Recommended to get vitamin D to at least 100nmol - that's 40ng/ml

34ng/ml is 84 nmol

endmemo.com/medical/unitcon...

[thyroidmom84 in reply to SlowDragon]

Thank you. Do you have anything I can show her with this recommendation?

[SlowDragon Administrator in reply to thyroidmom84]

ncbi.nlm.nih.gov/pubmed/286...

Vitamin D deficiency is frequent in Hashimoto's thyroiditis and treatment of patients with this condition with Vitamin D may slow down the course of development of hypothyroidism and also decrease cardiovascular risks in these patients. Vitamin D measurement and replacement may be critical in these patients.

endocrine-abstracts.org/ea/...

Evidence of a link between increased level of antithyroid antibodies in hypothyroid patients with HT and 25OHD3 deficiency may suggest that this group is particularly prone to the vitamin D deficiency and can benefit from its alignment.

Optimal levels 100-150nmol

vitamindsociety.org/benefit...

[thyroidmom84 in reply to SlowDragon]

Many thanks!

[vocalEK in reply to thyroidmom84]

Take a look at this list: daction.org/benefits-of-d

[Marz]

grassrootshealth.net

[thyroidmom84 in reply to Marz]

Thank you!

[thyroidmom84]

This is exactly the kind of thing I was looking for- thank you!!!

[cazlooks]

why don't you download some literature from here: aboardtheworld.com, and point out to her the benefits of early retirement??? That may be more beneficial for the world at large than trying to educate her. (Sorry but you said you were up for a laugh). Perhaps you could help with our mystery too - my daughters GP prescribed her 25mg levothyroxine instead of her normal dose of (consultant prescribed) 2 grains of NDT. There really is no hope for these people!

[thyroidmom84 in reply to cazlooks]

Ha- this is the best!

[hemp66]

I was very ill for months Dr. Checked all from head to toe with Scan's ex rays MRI ect. Blood test .I take 50 Levothroxine & supplement VD .so I read up on Thyroxin &VD spoke to people on here . HENCE i made sure I was taking my Thyroxin with at least two hours either side of no eating and only drinking water . Stopped taking VD . Within 3 days I had my life back my Dr. is surprised at the results ,but I am now about 2-3 months on and feeling great 🤔😊

[adin in reply to hemp66]

I'm sorry to hear this but what it means "I was very ill for months...Stopped taking VD . Within 3 days I had my life back "??? Wath kind of ill ?

[hemp66 in reply to adin]

Dr thought I had Thyroid problems but all my scans are clear and good . Hence why I looked at my medication , All symptoms like laryngitis but not could sleep for days, always tired generally felt & looked awefull .

[AnneEvo in reply to hemp66]

Are you still taking Thyroxin? When you say VD do you mean vitamin D?

[hemp66 in reply to AnneEvo]

Yes , Thyroxin yes, Vitamin D . Thyroxin doesn't like Vit D. Take my thyroxin With 2-4 hours either side of nothing but water eg only water after 20.30 take thyroxin at 23.00 hrs sleep unit 0900 then take other medications no more Vitamin D

[thyroidmom84 in reply to hemp66]

That’s great news!

[humanbean in reply to hemp66]

Be careful with your abbreviations, hemp66.

VD used to refer to venereal disease. I had to read several posts to work out you were referring to vitamin D.

[hemp66 in reply to humanbean]

SORRY

[humanbean in reply to hemp66]

I was only teasing...

[hemp66 in reply to humanbean]

👍😊. 😇😇VD

[vocalEK in reply to humanbean]

I have wished people "Happy V.D." on February 14. (That's Valentine's Day in the USA.)

[AnneEvo in reply to humanbean]

😆

I was certain she wasn't referring to venereal disease! But wanted to confirm hemp66 did mean vitamin D.