Hi again everyone, you have served me well on this site over the last couple of years since I discovered you. I’ve asked a few questions & got lots of helpful replies.
In 2014 I found a Prof endo at QE Birmingham; he was the best endo I had ever seen. He managed to get my T3 dose correct with a bit of prompting from me. Also get me off the cortisone 1mg a month which had been prescribed by a well known private doc. Sadly the Prof endo left January 2015 to do diabetes research in Oxford. By July 2015 I had appointment with another endo at same hospital following a short synacthen test & was told I was ‘cured’ and officially signed off. I do feel really well. In the end it was simple – unable to convert any T4, needed T3 only; the cortisone was simply supporting me as I was sub clinically hypo.
So now after 35 years of having the classic hypo symptoms , along the way losing my marriage, my home, unable to work, I am as close to my old self as I will get considering I’m now 64
I’m on the verge of going to see top medical negligence lawyer to sue the NHS, BUT having read old postings & replies here, it’s become clear that the GPs particularly are between a rock & a hard place. Is it the GMC and/or NICE that put the rules in place, for blood test ranges, not to prescribe T3, etc ?
With that in mind, it would be those bodies to sue and not the NHS as a whole.
An alternative is to start an online petition to draw the problems we hypo’s have to MP’s attention. Any views please?