WTAF just happened?: So, just before Christmas we... - Thyroid UK

Thyroid UK

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WTAF just happened?

rocketrob01 profile image
18 Replies

So, just before Christmas we moved to South Yorkshire.Today my wife had her 1st appointment with her new GP.

After over 12 years of constant fighting with her old GPs over her hypothyroidism. Never getting an appointment with a NHS endocrinologist, being under medicated (25mcg of T4). Being constantly refused T3 medication. Having to pay to see a private Endocrinologist and pay for T3 medication.

We spoke to her new GP this morning about seeing a NHS Endocrinologist, he replies " why do you need to see a NHS Endo?, you're GP should manage your condition. Get your private Endo to write to me and I will prescribe you T3 on NHS".

That was it. Done, dusted and out of his office in 5 minutes. No arguments, no fighting, no quoting NICE guidelines to a gormless idiot who has no interest in your medical welfare past the practice's wallet.

It's like moving to a totally different country if not planet.

I'm now officially a fully converted Yorkshireman, off out now to buy a flat cap and a Whippet.

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18 Replies
TiggerMe profile image
TiggerMe

Perfect 👏👏👏 we all just have to keep hunting for those diamonds 🤗

SlowDragon profile image
SlowDragonAdministrator

Brilliant news

FallingInReverse profile image
FallingInReverse

My favorite kind of posts - the kind that leave me with a little smile : )

humanbean profile image
humanbean

I love whippets and will envy you if you get one, but I'm not so keen on flat caps. ;)

Make a note of the doctor's name that your wife saw and ask to see him or speak to him in future. A lot of surgeries these days don't care if patients see or talk to the same doctor each time they have an appointment.

Forestgarden profile image
Forestgarden

Wow. Lets all move to Yorkshire!

Brightness14 profile image
Brightness14

Great News and very funny too.

DippyDame profile image
DippyDame

It all sounds very promising but has your wife now received the T3?

In the interest of the rest of us, how much T3 is prescribed?

I thought an NHS endo had to initially prescribe T3 for a trial period before passing the prescribing to a GP.

Was their no suggestion that testing should be done first before prescribing T3 on the NHS.

You say, being under medicated (25mcg of T4).

Surprising the GP didn't suggest increasing her levo dose first given that she has been on the minimum starting dose of 25mcg usually for children or the elderly frail.

If it works for your wife then this GP treatment should be available to all who need T3....and some of us need a supraphysiological dose!

I absolutely agree, current diagnoses and treatments of thyroid disease is a scandal but this case seems to potentially open a can of worms.

There may be a rush to South Yorkshire and a high demand for whippets and flat caps!

Good luck!

rocketrob01 profile image
rocketrob01 in reply to DippyDame

Initially she was on 25mcg for a few years with old GP refusing to raise it till I paid to see a Private Endocrinologist who raised her dose to 75mcg.After a few more months he then began to proscribe her T3, 10mcg at 1st and then 15mcg. All private as her old GP refused to pay for T3.

Her new GP just said if it works it works and as soon as he gets letter from our Private Endo he will then proscribe it on NHS prescription.

DippyDame profile image
DippyDame in reply to rocketrob01

GP is absolutely correct...if it works it works.

But... it's a scandal that the NHS don't see it that way,

The powers-that-be may still step in and refuse to prescribe since the letter is not from an NHS endo who ultimately holds the decision....I hope not.

he will then proscribe it on NHS prescription.

PROscribe means to forbid... I don't think that's what you intended to convey. Best to avoid confusion.

Good luck.

rocketrob01 profile image
rocketrob01 in reply to DippyDame

Proscribe was an auto correct mess up, sorry

DippyDame profile image
DippyDame in reply to rocketrob01

Don't apologise!

TiggerMe profile image
TiggerMe in reply to rocketrob01

Under the 'More' button lies an edit option... I use it a lot as my fingers and brain often have a difference of opinion 😏

Cavapoochonowner profile image
Cavapoochonowner

Great news,but I'm in South Yorkshire and my NHS endo totally ignored my email for an NHS trial of T3 and my GP surgery has zero T3 prescriptions so don't everybody rush here thinking all doctors are the same.Still, I've lived here all my life and wouldn't live anywhere else.I have a cavapoochon,not a whippet and hats don't suit me so I don't have a flat cap.Wishing you all the best.

rocketrob01 profile image
rocketrob01

As a side note, can people please stop DM me asking if they can register at my address so they can then see the same doc.I think the Surgery will get suspicious if we have over 50 people registered as living in the same house.......

We are not a hippy commune....

knitwitty profile image
knitwitty in reply to rocketrob01

Oh go on , take one for the team can't you 😂😂 Only joking don't worry ! :)

Ellie-Louise profile image
Ellie-Louise

I’m still trying to work out what the A means in WTAF. 🥴

Joant24 profile image
Joant24 in reply to Ellie-Louise

I’m guessing “actual”

HealthStarDust profile image
HealthStarDust

I think this is called luck of the draw, rather than anything to do with Yorkshire.

Happy for your wife’s result, but do be mindful your GP may have been a tad foolhardy as there would need to be a shared management agreement within the NHS for T3 to be prescribed on the NHS, generally. However, I can not see why a GP can’t ignore this as they do for so many other recommendations.

I hope this works out for your wife long term nonetheless, and it would be good if more GPs used their power for the care of patients rather than follow bureaucracy.

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