OK, so I would like some input from others here:
Last night, I had a phone consult with a person originally trained as a nurse and a mid-wife, who now works with hormonal therapies and rebalancing hormonal imbalances. She was recommended to me by someone in another forum.
A lot of what she told made made perfect sense, but other things didn't. For instance: she said that Hashimoto's is a curable disease in most cases, or not even a disease in the true sense of the word. What she means by that is that most people get their thyroid function back once they find the cause of the problem (inflammation).
I have read so many times over the years that Hashimoto's is the number one cause of hypothyroidism, and that it is incurable.
This consult also told me that, in her experience, most people on thyroid hormone replacement feel best when they have a TSH around 2, and that the TSH must be normal at all times, even on drugs containing T3. I have never had a so called normal TSH on NDT. Even as little as 1/4 grain suppresses my TSH below 0.
The thing is that I have noticed that, once my TSH drops below 0, my antibody levels go down. At the time of diagnosis, 15 years ago, my anti-TPO levels were +6000. On a so called normal TSH (around 2), they were around 1500-2000. On TSH suppressive doses of NDT, they are undetectable (<21).
She said she has hardly ever heard of anyone taking as much NDT as I do (5 grains of Erfa daily), and that most of her patients feel great on 1.5-2 grains daily. Very few people, if any, should need more than 4 grains daily, according to her.
I just don't know...like I said, other things she said made sense (like you should not take estrogen if you are pre-menopausal, as you are often estrogen dominant), but only natural progesterone, 10 days a month at bedtime, and that Medrol is not the best treatment for adrenal fatigue, as it tends to suppress your adrenals instead of supporting them).
But...I just don't feel comfortable hearing that I need to have a normal TSH along with FTs well in range, that hardly anyone needs more than 2 grains of NDT daily, and that a TSH around 2 is ideal...I know from experience that I cannot keep my TSH between 1 and 2 (where she recommends it) on drugs containing T3. The last time I had a so called normal TSH was on 150 mcg of Euthyrox daily...