I've been pretty much bedridden for the last 14 months now & am perhaps at my lowest ebb. No energy whatsoever (exhaustion/fatigue). I'm either permanently sweating or freezing cold to the point of uncontrollable shivering under a duvet with an electric blanket on. If asleep, this shivering can & does wake me up. I don't seem to be able to do more than 4hrs out of bed even on a good day!
I was diagnosed with Hypothyroidism since around 2002/04 (but think I'd had it much longer). I've also been diagnosed with Fibromyalgia (2010), but again think this has been with me for a very long time...! Suffer from severe Migraines (with aura) since 1972/73 (1 to 2 per week / 10days). Chronic reoccurring NPPV (Vertigo) & also suffer from chronic gut issues i.e. IBS, bloating, gas & am now possibly/ likely gluten, lactose & oats intolerant. Always had a good healthy diet, inc proper home cooked meals, but now told I can't eat my lentils, beans etc., & have to follow a FODMAP diet.
I used to be a regular swimmer (2/3 times per week for almost 20yrs) until I became allergic or intolerant to Chlorine & had to give it all up.
I've no faith whatsoever in our NHS / GP service, & don't feel as though I really get any coherent support at all. I'm confused a lot of the time, probably because I also suffer from disturbed sleep (3 / 4 times every night). I've said on umpteen occasions to my GP that this is no way to live, I'm in a state of existence only.
I've not been able to work since 2002 after I failed to recover from major surgery that left me with a great lump feeling in my throat / chest & horrendous gut issues on top of all of the above. I've managed to live off of a very small & meagre private income, but this has now all gone. I'm considering paying privately to have full blood work done re Hypothyroidism as my GP will only put me forward for the basic blood test, which has come back 'normal'! Serum free T4 level 17.4pmol/L & Serum TSH level 0.11mlU/L. I don't know how to understand the results & what they mean for me?
I take 100mg Levothyroxine, 1000mg Hi strength Cod Liver Oil & Sumatriptan 50mg for Migraine (cannot take preventatives for Migraine, as they leave me with a permanent headache). I've requested to try the NDT but been told I can't have it. Also requested to try Lactose free Levothyroxine, which they've agreed to me trialling for just one month only, as it's supposed to cost a lot more than the standard Levothyroxine! Why this would be so, I really don't know & I don't have the energy to ask. If I do ask, I then promptly forget within seconds.
Is there anyone out there that has there wits about them, enough to try & help me out a little?
1. Do you think it worthwhile me getting full blood work up done privately...? Do you know how to get this done if you're housebound & who would be the most cost effective when I've no income?
2. When the results come in, how do I &/or my GP interpret them...?
Sorry for long post & I hope to goodness it kinda makes sense, as having problems keeping eyes open (Migraine & exhaustion).