I've recently been diagnosed with autoimmune thyroid disorder (mainly, I have to say, thanks to this forum.. without you lot advising me to take private blood tests I'd never have got the thyroglobulin antibody test that finally told the endocrinologist there was something going on despite euthyroid labs)
So the story is:
I went to the docs with abdominal pain and bloating. They suspected gynae issues but ran blood tests too.
Thyroid levels came back firmly in the Hyper range so I was referred to the endocrinologist.
All subsequent bloods came back euthyroid, but gradually TSH was getting higher and FT4 was getting lower.
During this time, my pain and bloating subsided. I had a breif (2 week) period of feeling ok and then got muscle weakness, breathlessness, brain fog, puffy ankles etc.. all the classic Hypo symptoms.
Thanks to you guys I got a private, full Thyroid work up which showed low ferritin, High total T4 (which I know doesn't mean much) and FT3 and FT4 at the lowish end of normal BUT my thyroglobulin antibody was twice over range. So when I went back to the endo, I showed him this and he prescribed Levothyroxine 50mcg a day based on symptoms and antibodies.
I also have a goitre and nodules but the guy doing the scan didn't measure them so no-one is any the wiser about them!
Since being on Levo I've blown up like a barrage balloon and the pain has come back again. I can't stand it!! I don't know what to do. Whether to stop the meds or whether it will get better. Brain fog has lifted and aches are a little better but I can't bear the bloated feeling and the pain, whilst manageable right now, worries me that it might return to its former awful glory.
I was wondering if anyone had any good stories about Levo or are they all bad? I can't see my endo prescribing NDT or even T3.
Does anyone have any advice? Thanks so much for reading this.