Thyroid UK is working with the Scottish Government on this survey which is part of a listening exercise to learn more about patients' experiences in respect of the diagnosis and treatment of their hypothyroidism. We hope that the results will lead to a change in the way thyroid disease is diagnosed and treated in the UK.
We want people who were hyperthyroid to take part in this survey too because we are very interested in how you were treated after you became hypothyroid due to RAI or thyroidectomy.
It may seem that the first few questions are not relevant to you but please persevere as later questions are very relevant.
If you're in the UK please spare 15-20 minutes to do cpmplete the survey. Feel free to share the survey on Facebook, Twitter and other social media
RFU, The survey whittled down the numbers of questions to those asked by the Scottish Parliament and a few others. It was originally longer taking about 45 minutes to complete.
Distinguishing between primary, secondary and tertiary hypothyroidism isn't necessary for the purposes of the survey although getting a diagnosis maybe a much longer process for those with secondary/tertiary. Thyroidectomy makes one hypothyroid overnight and RAI does the same or induces hypothyroidism in weeks or a few months. There's less likely to be a build up of long term undiagnosed hypo symptoms for the latter two.
There are questions about which meds people use/used and whether they are/were prescribed by NHS or private clinicians or self funded and self medicated.
Have completed survey with no probs. Yes there could have been more to it but ANYTHING that can help us and up and coming thyroid sufferers is a great thing. 10 years of being ill because of toxicity (meds) and NHS endo refusing to believe me makes me say let's have more surveys. Every month if needs be !!
Thank you, Turquoise13. My endo told me Levothyroxine couldn't cause the adverse effects I suffered. I spent 3 months on T3 only and cleared the T4 build up and I'm well now on T4+T3.
Hi Clutter, I definitely want to contribute to this survey but have been putting it off as I have another GP appointment coming up and I expect I will have more information to offer after that. Do you know for how much longer the survey will be open, please?
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