Thyroid UK
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THYROID Problems-Survey

Hi All,

I am Sama. I am new here. I have undergone thyroidectomies for Papillary cancer thyroid in the past and on 125 mcg thyroxin everyday.

I am doing a survey on how thyroid is affecting mental health, below is my first survey link. I would be coming up with more links. Please help complete the survey. Thanks in advance.Please feel free to add more suggestions on my questions.

[Survey deleted by Admin until TUK's permission is sought.]

Regards,

Sama

21 Replies
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Sama

You haven't given us any information either in your post or in your profile.

I think you ought to explain why you are doing the survey and how the information will be used.

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I agree with SeasideSusie, we need more information. Why are you conductiing this survey and where will it be used?

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Hi All,

Apologies. I am firstly conducting this survey to understand how many people are going through the problems I am going through. As I said, this is first of the surveys and there are many more to come. Based on the survey am trying to arrive at productive solution to the problems we are facing and I can only at conclusion about what I can do about it once I see my first survey results. But I assure that I will be transparent going forward.

Thanks,

Sama

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N° 5 Are you suffering from any thyroid disorder and do you completely understand your thyroid condition?

That is two questions, and cannot therefore be answered with one 'yes' or 'no'. Any 'data' you get from this question will be misleading.

Same goes for N° 10. And you really should have got someone to check the grammar before asking people to fill your survey in. It doesn't inspire confidence. Are you new to writing surveys? Sorry, but it's really not as easy to come up with a good questionnaire as people might think. I see bad ones all the time the results of which really don't give a clear idea of the situation.

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Yeah. I underwent thyroidectomy when I was 20 years old for papillary cancer thyroid. I am sorry as it is not inspiring you confidence. Thanks for pointing out about the question5. Any corrections/inputs on my questions are welcome.

Regards,

Sama

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Samashaik,

I don't believe you have permission from Thyroid UK to conduct surveys on their forum so I am deleting your survey. Please contact louise.roberts@thyroiduk.org or lyn.mynott@thyroiduk.org to discuss the purpose of your survey and to ask for their permission to post the survey and any follow up surveys on the forum.

You might note that this is a UK forum so if you have a genuine reason for asking for household income you should change it to £ Sterling.

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Thank you for the response. I will do that.thanks.

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Samashaik,

The office will reopen on 3rd January. In the meantime feel free to join the forum and ask how people cope after thyCa or thyroidectomy if it will help you understand and manage your condition.

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Sure. Thanks.

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Sama I composed many questionnaires in the course of my previous profession, and it isn't the most straightforward of things to do. In the spirit of helping you, I'd say sorry, but each of your questions has a basic error of one sort or another, and the questionnaire isn't yet sufficiently honed for you to be asking members to complete it. For instance, re. Q1, if I'm 25 (I should be so lucky) should I check the first option or the second; or if I'm 40, should I check the second of the third option. Re. Q8 the answer to "do you feel stressed all the time" can only be yes or no. Many questions are in fact two separate questions and can't be answered as one. We aren't paid in dollars in the UK but in any case, I wouldn't have thought for the purposes of mental health outcomes you need so many subdivisions for earnings.

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Yeah got it. I accommodated two questions in one because its a free survey and I cant exceed more then 10 questions. Thanks.

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But you can't do that, it compromises your data. The whole thing becomes meaningless.

Oh, and if you want people to see your replies, you need to click on the 'reply' button at the bottom of their comment, so that they will be notified. :)

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Thank you! I got your point.I really appreciate for taking your time out and giving valuable inputs :) Happy to be in touch on forum for further advises regarding the mental health related issues due to thyroid.

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Not seen your ideas as it's already been taken down but I've looked at several similar things in the past and given up as I don't seem to fit in with any of the alternatives so I have to agree with the others that devising such things is a work of art to get it spot on.

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silverfox7 Haha absolutely not.For more clarification,I absolutely don't need to devise for spot-on because I know this is not social media website and its health discussion forum where health issues are seriously discussed. :)

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Hi

Having seen the outcome of several studies they cost a min of£5000,000 and that was just to get Nice to alter again their stance on say pain relief. It will take an army of professionals including professors and hundreds of therapists with NAMED individuals to have a hope to get the pain relief reversed/even looked at.

I am not sure what you hope to achieve in the long run but unless you are a top specialist - endo or psychiatrist with people helping you it’s likely to cost substantially more time to prove, unlimited finding and the barriers will be huge. ( from AMA if in USA)

In the USA at the moment several top scientists like mike Adams and health journalist Alex Jones face persecution and are heavily armed/ have huge security.

Mike Adams has proven a great many things Pharmaceutical companies dislike. It’s a double edged sword- care must be taken if you intend to raise ideas( especially if true).

I’ve never seen health questionnaires with financial info in them- not sure what relevance that has. Random questions from unknown/ anymous people will be insufficient as a study group.

However I wish you well.

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Thanks. I realized that income should not have been included in the survey and the reason for backlash. Thank you once again for your reply.

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Hi

There was no back lash intended at all.

I just advocate that care is taken when embarking on surveys for an unknown purpose. Legislation/ guidelines are very tough to change when you’re a scientist and have support and resources to complete the studies.

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My best wishes to you on xmas day, x

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Thanks. wish you the same.

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Merry Christmas, Samashaik...

I was interested and came over here to fill out your survey... ;)

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