NDT: NDT Hi Everyone I would really appreciated... - Thyroid UK

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NDT

T3MARY
T3MARY

NDT

Hi Everyone I would really appreciated some advise went to GP today and hes agreed I can go on NDT as long as I pay for it (NHS) I've been on 3 x 20 mcg liothyronine for years the doctors has no experience with NDT suggested I go on line and find some advise how to manage the transition from one to the other please help

18 Replies
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stopthethyroidmadness.com/t...

I think it is cheaper when people order their own NDT (somehow the NHS hasn't negotiated for it) and there are several places where even a prescription isn't needed but ask for recommendations for ordering it from the UK.

Spareribs
SpareribsAdministrator

Just wondering why you're changing from T3 to NDT.

Any GP can prescribe Natural Dessicated Thyroid on a 'named patient basis'....

it's just what was used before it all got synthetic, and it still works!

I used Nature Throid & felt better for a year before diagnosis (then put on Levo but due dose increase recently halted as TSH was 'in range' at 3.84). J :D

thyroiduk.org.uk/tuk/treatm...

(I think I paid 23p per grain, on-line)

T3MARY
T3MARY
in reply to Spareribs

Hi thanks for getting back to me I will have a look

At Nature thyroid the reason I'm changing is I seem to get high and lows there is no even keel

Thank you for the link much appreciated

Ps any ideas how to go. From t3 to ndt

PinkNinja
PinkNinja
in reply to T3MARY

Heloise posted a very good link above on how to transition from T3 to NDT. Here it is again so you don't have to go searching to find the right reply :)

stopthethyroidmadness.com/t...

PinkNinja
PinkNinja
in reply to PinkNinja

Basically, you drop your dose of T3 by 10 mcg and add one grain of NDT. After a week or two your body should have started converting the t4 so drop another 10mcg of t3. You should now be on 1 grain of NDT and 40 mcg T3.

After another week or two, follow the same process again, adding one grain NDT and dropping your t3 by 10mcg for a week or two and then by another 10mcg. You are now on 2 grains NDT and 20mcg T3.

After another week or two, add another grain of NDT and drop the T3 dose as before until you are on 3 grains NDT and no T3.

You may need a little fine tuning after that.

Is your doctor aware that NDT is usually cheaper than T3?

I hope that helps

Carolyn x

T3MARY
T3MARY
in reply to PinkNinja

Thank you for your advise its really frightening process

PinkNinja
PinkNinja
in reply to T3MARY

Just take it slowly and if at any point you feel that it isn't working for you, just go back a step until you feel comfortable to move on. It is really worth looking on the Stop The Thyroid Madness website for in depth dosing information.

The website of Thyroid UK (who run this forum) has information about where you can obtain NDT with your prescription. Here's the link;

thyroiduk.org.uk/tuk/treatm...

If you take your prescription into a local pharmacy and ask how much it would cost, you can then compare to other pharmacies and the ones in the link above.

All the best

Carolyn x

faith63
faith63
in reply to T3MARY

If you take the t3 once a day and your dose is high enough, it is every bit as stable as anything else. Do you know about doctor Lowe and his work with t3? You really don't need to change and are actually likely to get hypo, as ndt has so much less t3 in it than you are on now. If you don't convert the t4 well, you are really going to be undermedicated. I think 4 grains of ndt, has like 32mcgs of t3.. I would do more research before switching.

T3MARY
T3MARY
in reply to faith63

Thank you Faith I have never taken t3 altogether is that normal youve certainly started me thinking

T3MARY
T3MARY
in reply to T3MARY

Hi Faith would taking all my T3 at once not give me a massive high ?

faith63
faith63
in reply to T3MARY

Are you able to contact SHAWS, who is on this forum? She has all the info on t3 from Dr. Lowe..all the links, that are so helpful. No, you should not get symptoms, except maybe some increased heart rate, maybe, at 2 hours, but i don't. If you are overmedicated, then you get symptoms.

faith63
faith63
in reply to T3MARY

All Dr. Lowes patients took it that way, the Cytomel website and t3 websites, in general, all say 1x per day dosing.

T3MARY
T3MARY
in reply to faith63

Thank you so much I will message shaw and kindly ask for the links it would be so so good if I could take 1 dose a day and not have to change

Kind Regards

faith63
faith63
in reply to T3MARY

Yes, one dose is best! I hope i helped you!

T3MARY
T3MARY
in reply to faith63

Hi Faith

You've help me have a choice before changing I'm going to taking t3 altogether first thing in the morning for the next 3 weeks thank you ps I found the links

Hi I have nature Thiroid on a script from Springfield at Richmond, postal.

Jackie

T3MARY
T3MARY
in reply to Jackie

Thank you Jackie much appreciated

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