Would like to try NDT: Hi could someone please... - Thyroid UK

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Would like to try NDT

lorrainewilson64 profile image
6 Replies

Hi could someone please advise me where it's best to buy NDT .Ive been on 100 levo for 16 yrs never felt myself put on 2 stone , doesn't matter how hard I try but can't seem to lose it .Doctor always says my thyroid is on the correct medication. Just wondering if a grain of NDT would help .Thank you

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lorrainewilson64
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6 Replies
Ruthi profile image
Ruthi

Before you take the step of going to NDT its worth checking that you are on enough thyroxine. No point in leaping into the bog (upsetting your doctor, suppressing your TSH) if what you actually need is a dose increase.

Did you get the results from your doctor? If not just ask at reception, its your right to have them.

lorrainewilson64 profile image
lorrainewilson64 in reply to Ruthi

Hi thank you for your reply think I'm going to ask for recent blood test and see what happens. My doctor has never gave me much info about thyroid test .

lorrainewilson64 profile image
lorrainewilson64 in reply to lorrainewilson64

Had reply from Dr T3 4.7 and T4 20 ......just found out I should of been given the ranges also ..... grrrrrrrr

SlowDragon profile image
SlowDragonAdministrator

Has your GP checked levels of vitamin d, b12, folate and ferratin. These all need to at good (not just average) levels for thyroid hormones (our own or replacement ones) to work in our cells. Especially if considering T3or NDT.

Also have you had thyroid antibodies checked? There are two sorts TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both are high this means autoimmune thyroid - called Hashimoto's, the most common cause of being hypo. NHS rarely checks TPO and almost never checks TG. NHS believes it is impossible to have negative TPO and raised TG. It's rare, but not impossible, there are a few members on here that have this.

Make sure you get the actual figures from tests (including ranges - figures in brackets). You are entitled to copies of your own results. Some surgeries make nominal charge for printing out. Alternatively you can now ask for online access to your own medical records. Though not all surgeries can do this yet, or may not have blood test results available yet online.

When you get results suggest you make a new post on here and members can offer advice on any vitamin supplements needed

If you can not get GP to do these tests, then like many of us, you can get them done privately

thyroiduk.org.uk/tuk/testin...

Blue horizon - Thyroid plus eleven test - will check all these

If you have Hashimoto's then you may find adopting 100% gluten free diet can help reduce symptoms, and lower antibodies too.

Assume you know that Levo generally should be taken on empty stomach and no food or drink for at least hour after. Many take on waking, some prefer bedtime, either as more convenient or perhaps more effective. No other medications at same time, especially iron or magnesium, these must be at least 4 hours away

Best advice is to read as much as you can. Vitamin and minerals levels are very important, but standard NHS thinking, doesn't at the moment seem to recognise this. You will see, time and time again on here lots of information and advice about importance of good levels of B12, folate, ferritin and vitamin D, leaky gut and gluten connection to autoimmune Hashimoto's too.

Many of us have found significant improvement getting vitamin levels up and addressing gut issues too.

lorrainewilson64 profile image
lorrainewilson64 in reply to SlowDragon

Hi thank you for your reply I take my levo about 4 am ..breakfast about 8 am ...only results Dr has ever given me is Bn range 0.24 ( 02-7 4-2 ) not sure what it all means ...think I'm going to ask for recent print out .

jacrjacr profile image
jacrjacr

that happened to me too...i had low free t3 , never converted well even after everythin optimal...so have wen to ndt nature throid.....1.5 grains split.......and i was on 100mcg synthroid but many have to gradually go up like 1 grain 2weeks split then one grain am and half grain pm..i tried 1 grain like the converstion charts and went hypo

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