Below are my test results since 2012 (I hope they appear OK - I tried to paste them in as a table) - I 'd be grateful for anyone's comments/advice on them. I have had many of the hypothyroid symptoms (mainly joint pain and fatigue, but so many of the others too - similar to fibromyalgia) since I was in my early 20's (lower back pain since 13) and I'm now 56. It was only in 2012 that I got referred to a rheumatologist, and only then was it was found that I have TPO antibodies >1000 (so I assume Hashimoto's). I then saw an endocrinologist who did a whole battery of tests including short synacthen test (basal level of cortisol was low in short synacthen test – 209 when 200 is cut-off) and then an Insulin Tolerance Test (40 min cortisol was 623, above the 550 nmol/L cutoff). My TSH and T4 were as below, and the Registrar who I saw initially said I would be put on a low dose of Levothyroxine. But when I saw the Endo, he said that because all the results are within range, they would discharge me and I should just be monitored 6-monthly for T4 and TSH by my GP.
I have read Dr Lowe's article on this site and I believe I may have too little thyroid hormone regulation - but what can I do about it? I monitor my own FT3 by paying for tests through Blue Horizon, and so far these are within range (though below the range mentioned on this site thyroiduk.org.uk/tuk/te...
I am going to my GP on Friday, mainly to discuss the results of the rheumatology scan on my feet (I get burning and tingling in my soles and toes) but I thought I would also discuss these results with him. The rheumatologist hasn't given up on me but I think she might discharge me next time (she has given a diagnosis of Possible Psoriatic Arthritis ). I was on Hydroxychloroquine for 6 months last year for my finger joints, but I didn't see a huge improvement - although I feel that my back and hips were less painful and I had a bit more energy, she said it shouldn't have had an effect on this. It does seem logical to me though, that a drug which suppresses the immune system could suppress the action of TPO antibodies?
I know it's difficult for the doctors as I don't have any really severe, obvious symptoms which would help them with a diagnosis, but my whole life is lived to adjust for being less well than I should be and no-one seems to understand what this actually means - and I am so tired of this.
These are my results - I don't know if anyone has any advice as to what I should ask of my GP? With these results, do you think I could ask for thyroid hormone regulation - and what exactly does this mean? At my GP practice they only seem to know that as long as TSH and T4 are within range, all is OK and I don't need any treatment.
TSH T4 FT3
Range 0.4-4.5 10.0-24 3.1-6.8 (Thyroid UK 4-8.3)
01/08/2012 4.14 14.5
31/01/2013 3.9 13.5
08/08/2013 2.6 14.6
21/02/2014 2.5 16.3
07/08/2014 2.11 16.6
05/02/2015 1.55 13
Sorry - the results I posted as a table didn't come out! Basically, the rows with only a single result show the FT3 result. The others are TSH and T4.