I am back.. I have written a long saga of problems taking thyroxine.. But this is where I am now.
Thyroid removed due to graves put on 100 of levo.. Never been well even first day I took it breathless face, eye lids swelling, high bp, agitation etc .. Then I noticed after a month hairloss.. Anyway got really poorly gastritis etc bed bound for last 2 years.
Anyway I had been on injections helped with stomach but still nausea, sweating head all over the place etc .. Alrhough he said blood test ok. That consultant gave up with me and basically said it could not find any reason for thyroxine to do this.
He put me on pure thyroxine tablets 100 a day since last march. Tsh jumped up to 29 and t4 and t3 low. I have battled with side effects bed bound, nausea, sweating swelling of face, hair loss .. List goes on.
On the 21at November tsh had come down to 12.5 t4 and t3 in range but low..
Found out vit d was 16 was started on high dose of d3.
Through December I was getting worse.. Now these what my results showed.
9th jan Tsh 0.01 t4 34 t3 6.6
Told to stop taking levo for a week
19th jan tsh not known but t4 17.4 t3 4.9
Told to take 100 levo for 2 days then miss a day and so on. Not getting any better
29th jan tsh 0.1 t4 19.8 t3 4.9
5th feb tsh 0.1 t4 22.5 t3 4.7
Still anxiety sweating nausea, hissing in head can only sleep 3 hours at a time wake sweathing anxiety etc.. Gp said to take 100 every other day.
25th feb tsh 0.4 and t3 and t4 was not done which is not help to me..
Saw consultant yesterday and still insists levo cannot cause symptons but cannot explain what's going on with blood results.
He has now said to take 75 levo a day? So obviously he was not listening when I said I had been reduced to 400 a week.. Ie 100 every other day.
My b12 is over 500
Vit d now vey high in range
Folate is now 24 range 3 - 17 ( originally was 3.1 put have been taking folate)
Iron was 38 rang 12 -300
But is now 34 even after taking tablets which I had to stop as seem to not help with symptons .. Stomach probs constipation
On top of all my symptoms my bp is all over the place .. My boobs hurt like hell and my hair looks greasy but is dry with still hair loss.. Only a third of my hair left now
Any ideas much appreciated