I've been taking levothyroxine for about a year now and before taking them I was healthy and never had a problem with losing weight as long as I was watching my diet and doing sports. I wasn't totally full of energy but I was okay, however, hairloss and excessive sweating have always been an issue for me along with always feeling cold (even though I was sweating!). In Jan last year, I was initially put on 0.50 mgc based on a TSH of 5.71 which was lowered to a dose of 0.25 mgc after I was feeling unwell soon after starting them (brainfog, extremely tired etc.). After about 2-3 weeks I also started to get really dry and extremely red eyes when wearing contact lenses. I went to several doctors and an eye hospital and all they could find was that they are dry but no one knew why. I have glasses that I can wear at home but can't wear them when I'm at work so this is a big problem for me (I got drops and some eye gel but nothing helps really).
Over the summer my GP said that my levels were excellent and he took me off the levothyroxine to maybe aid the dry eye problem. I was feeling a bit more awake again and the brainfog was completely gone after that but the sweating and hairloss soon came back. My eyes were getting a lot better though and I was able to wear my contacts comfortably again.
Went for a blood test in September they put me back on 0.25 mcg levothyroxine. After that I still had cold feet and hands, my eyes got worse again and I gained 8kg between then and now (still eating a healthy diet and working out when managing to get out of bed). I also started to have really bad anxiety and heart palpitations, which scared me to death. They did an ECG which was absolutely fine. As a result my GP advised me to only take half of the 0.25 mcg pill. I realise 0.12 mcg is an extremely low dose but the palpitations and the anxiety has gotten better, my eyes have gotten a little bit better as well but they are still really uncomfortable, dry and red, so this is still a big issue. Also, my feet and hands are still cold, my skin is really dry and I am still extremely tired even though I have taken additional B12 ampules for about 3 weeks now.
Today I got my blood results back on the 0.12 mcg levothyroxine:
Free T3 400
My GP said they are in an optimal range and he thinks that everything I experience has certainly nothing to do with the levothyroxine and he wouldn't even talk to me about exploring alternative options.
Now I feel a bit at a loss really as this past year has been a constant roller coaster ride and I was wondering if you have experienced anything similar or have any suggestions maybe?
I also heard many positive things about desiccated thyroid which he also wouldn't prescribe (no reason, as test results are fine) but I wouldn't mind getting it off the internet if it really is a better option. Do you think it could all be related to the levothyroxine?