Back on levothyroxine : Hi im back on... - Thyroid UK

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Back on levothyroxine

LaurieRose profile image
10 Replies

Hi im back on levothyroxine after a hospital visit with suspected steoke. It wasnt a stroke but put down to being hypothyroid TSH 4.73 thats the only result i was given. I had an MRI too and they said it was ok. (Big relief) ive been back on my original dose of 25 mcg for a week now still feel crap and tearful, now have headaches and agitation too. Im not normally an irritable person. Think im just fed up of never feeling right. I had a letter this morning to say go in for a visit to the GP.

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LaurieRose
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puncturedbicycle profile image
puncturedbicycle

Poor you, that sounds really scary. Is your tsh 4+ sustained on a dose of 25 levo? You need an increase. No wonder you feel so unwell. How long have you been on that dose?

LaurieRose profile image
LaurieRose in reply to puncturedbicycle

Thank you. Ive been on that dose since november 2014 i was only off it a month. My levels were ok when on it but i didnt feel any better. The consultant said id get worse if i dont stay on it. So im following orders. Even though scary it was reassuring to have the brain scan.

in reply to LaurieRose

I agree with the others regarding increasing the dose. I was not given any medication for over 15 years after 2 x RAi, and then put on 25 mcg thyroxine for 5 YEARS! Always being told that my yearly bloods were in 'range'! I just became more and more ill. Thanks to info from people on the forum, I increased my medication to 50 mcg last September and added 12.5mcg 2 months ago. I am feeling much better than I have done for a long time. I am awaiting last blood test results to see the difference in numbers. I know how I feel though. Also gut issues have improved after self treating with diet change and supplements, so yes I am enjoying some normality at last. I am so glad that you have found this forum because I know what a MASSIVE difference it has made to me. Best Wishes x

LaurieRose profile image
LaurieRose in reply to

Lovely to hear

in reply to LaurieRose

That was just to encourage you. x

LaurieRose profile image
LaurieRose in reply to

Thanks im on 50mcg levothyroxine now and seeing my GP for follow up on Wednesday. This forum and all your lively comments and advice have been helpful. I hope I can share the advice and support to others too. What a fab community.

in reply to LaurieRose

It's been a life saver for me. x

LaurieRose profile image
LaurieRose in reply to

Its great how its helped you pleased 😊

Naz67 profile image
Naz67 in reply to

What gut changes did u make?... Any info will help, I think I need to make some changes too!

Kind regards

in reply to Naz67

Hi Naz67 I have sent you a PM x

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