I have been on Thyroxin for 30 yrs, no problem, then when Eltroxin was changed the problems started. Doctor put my meds up to 225 mcg of Levo daily and I just kept feeling more tired which is why I went to doc in the first place.
To cut a long story short, I changed doctors, stopped taking the Levo and went to see Dr Petefield, who said I was probably suffering Adrenal fatigue and on too much medication. He took me off my meds and advised natural thyroid and adrenal supplements, which I took, at first I felt clearer but still very tired, I went back on 100 mcg of Levo with the natural supplements on Dr Petefields advice. I didn't feel much better. New GP tried me on T3, by this time my blood test results showed very low levels of T4 and T3 and my TSH was in the 50s. I thought I was going to die, pulse went down to 40 and I ended up in A&E being told I had angina. Its been a nightmare.
I am now under a nice Endo who has put me back on Levo and my bloods are looking better again, I do have more energy and am now on 200 mcg daily. The tiredness is creeping back in again though, so my plan is to ask for NDT Armour on my next visit although specialists cannot prescribe this under the NHS.
My Ferratin and B!@ are all fine but I am told that there isn't an accurate rest for rT3? Only in France. To be fair my new specialist does listen to me and wants to get my bloods back to almost normal and if I am still not any better he will recommend a specialist in Cardiff who apparent ly has worked with people on NDT.
Just don't know what is going on with my system and at times have wondered if I have ME. Any advice and help from you would be welcome, its been a long and arduous journey and I am feeling very down about it all. I am taking herbs for Adrenal support and having acupuncture to help me get through the day as well.
thanks for reading this