Endo nr Bristol: Hi, If anyone knows of an... - Thyroid UK

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Endo nr Bristol

helbell profile image
8 Replies

Hi,

If anyone knows of an Endocrinologist or even a private Doctor in, or nearish Bristol, that will prescribe NDT, pleeeeese would you pm me the name. I did contact a lady consultant who works both privately and through NHS but she has to do her own monitoring (understandable) before considering treating with T4 T3 combo, which I would be willing to try. She was kind enough to engage with me at length via email, and went as far as offering a free appointment to discuss 'the science' when I told her I was self dosing with NDT - something she flatly refused to advocate. From that I judged her to be pretty decent and conscientious but the trouble is I don't want to go back on just Levo while I am being monitored. After all this risk, trial and error, money and effort it seems like backward step. Under new monitoring, the whole process could nearly take a year and cost several to 5, or more, thousand pounds. She said that she asks self referral's GPS to refer on NHS but admitted GPs rarely did because of the cost to the surgery.

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helbell
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8 Replies
helbell profile image
helbell

I just want to say a big thank you to the folks who were able to give me the information I asked for. You know who you are. I did not expect a reply! And now I have an appointment with an endo in my town...whoop.

M1n1-mum profile image
M1n1-mum in reply tohelbell

Hi I saw an endo at the BRI who was fantastic at the beginning of December. She has started me on a combination of T3 and T4 and for the first time in three years I feel as though my brain is switched on and working. I have been able to burn the candle at both ends and haven't fallen asleep on the sofa for days - I would be happy to share her name privately, I don't know whether she would be able to help you with your request.

helbell profile image
helbell in reply toM1n1-mum

Thanks very much. This might be the lady I spoke to. I will ask you for her name if th4e recommendation I had nearer to me does not work out. :)x

joannaashley profile image
joannaashley in reply toM1n1-mum

Hello, could you possibly let me know who you saw. Im desperate now to get some alternative medication to ease my symptoms. Thank you :)

SusanKay profile image
SusanKay in reply toM1n1-mum

Mn1-mum, Would you please send me the name of the Endo you saw at the BRI and did you get referred to this Endo by your GP? Could you please send me a private message to let me know who you saw and how you got on. Thank you so much!

Hi helbell, I wondered if you still have a Bristol based endo who is willing to prescribe NDT? I just posted separately asking for suggestions for a friend's mum (I'm on NDT myself but don't live in Bristol and this mum can't travel far). Could you please PM me any suggestions you might have? Thanks.

helbell profile image
helbell

I'm trying to p.m you but not much luck. Please p.m me and I might be able to reply to message.

in reply tohelbell

Okay I will PM you now! Thanks.

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