Hi everyone, I thought I'd put this in a post to let you all know. I've just seen my GP and although she had researched and suggested LDN the answer was a resounding no from the powers that be. She agreed it was all down to money at the end of the day. She told me it would cost around £200 per month. I asked her what if I buy it would she supervise me? She told me to trial it for a month and if it works miracles she'll attempt to get it for me on the NHS. So I said with a smile on my face it's proven Levo didn't work for me you can see that from the blood tests, i've been taking NDT since March, could you put forward a case for me? I did explain what we have to go through to get our drugs, and that the drug companies are charging the NHS far too much and that's keeping us ill. I told her what I pay for T3 and she nearly fell off her chair!!
LDN.... The answer was no, but....: Hi everyone... - Thyroid UK
LDN.... The answer was no, but....
You can get LDN from a private GP if you have decide to do this. My LDN £14.50 a month.. that is standard. The LDN Trust have a list of people you can turn to. I paid for mine in Glasgow, with an initial appointment, and then I pay for consultation every three month which I now do over the phone, it is detailed and works for me. I never bothered to ask the NHS for this, I knew I just had to get on with it. Most patients with thyroid problems often find they need less medication for this once on LDN, not everybody, but a known positive side effect. You need somebody who knows what they are doing, hence approaching the trust mentioned above. I do get frustrated with the big pharma/NHS relationships.. but nothing we can do about it currently!
youtube.com/watch?v=yH_PLOc...
MaryF x
Hi MaryF, the GP suggested it for me at my last appointment, my thyroid antibodies are shooting up and fibro pain etc etc is really bad, now having injections for PA. I've just seen her and she did ask the question but she can't prescribe it. So I got my hopes up a little but knew it would be no!
Are the consultation charges scary? I will definitely look into this.
Thanks so much for this info MaryF
I'll now look at the videoll x
It will depend on who you see. I took a plane to Glasgow to go to a clinic there as I had run out of options, and I have a five disease profile... however if you contact the trust they have a network of GP's all over the UK. My case is different....but they will have had patients like you before. I felt it was economical to improve my health! Best to ask them and weigh it all up. They would then write to your GP and say you were taking it, that way it is supervised and legitimate! MaryF
Hi MaryF, I read it could even help my interstitial cystitis! I will look into getting it as you've suggested. I don't mind a bit of traveling! Thanks again 
Video was hilarious!!
Please let me know how you get on, I have naltrexon at home but have put it on hold because I am investigating B12 defficiency at the moment.
Roslin
Hi roslin, i've just been diagnosed with PA and i'm afraid it's a bit of a battle with the doctors like everything else. I'm having injections, even an acid free one I tried this afternoon at the doctors still is causing me pain in my bladder.
There are some good check lists for symptoms you could take to your GP
I really want the LDN to calm my system and reduce inflammation. It's so exhausting doing all the ground work isn't it! X
I think you are doing the right thing by starting LDN. You can get it ready diluted online after "consultation" from internet Dr or go and see Dr T Gilhooly in Glasgow, which I think Mary was referring to.
I have been onto B12d website and done the questionaire aand I come out very high and I was going to send off an active B12 home test today. If I have B12 defficiency I then have to try to convince my GP who doesnt accept private testing, it is just exhausting. I just worry about all the people that are unable to do the groundwork, as you say.
R
Hi roslin, would you mind PM the details of that site you can get LDN from? I don't have much money like most of us not working.
It's just so madenning all the hoops you have to jump through just to get a 69p injection!
I'm getting the book "Could it be B12" i'm sure it will make me very angry.
My dermatologist diagnosed me being low in B12 10 years ago, I had developed psoriasis in my armpits right out of the blue. My then GP just prescribed 50mcg of Cyanocobalamin which was totally useless. I should have started injections, my current GP confirmed this.
Good luck with this roslin and I really hope you get by our injections! X
And......!?!? Will she...!?!?
As predicted! No T3 from NHS Endo
Hoped the private GP would be the answer..
Gp says TPO antibodies can never go down!
GP visit was unsettling
Armour no longer prescribed
