Have been under active for 21 years, but the last 6 months or more I have been getting worse although gp's thought getting high and reduced from 200 to 175 then 150 (now on) .
Went to see Prof Walker this morning and do not know whether to laugh or cry. He is one of the old school who see TSH as gospel. Mine is 0.14, (range 0.3-6) , my free t4 is 15.4 and my free t3 is 5.1 .
Gp has said in letter TSH supressed, he said it's fine. it's all fine apparently and my gp thought could be t3 conversion issue !!!!!
BUT NO ITS NOT!!!!! we read far too much on web, and don't know the functions as well as we think......... and if we want to self diagnose , fine, why don't we leave the NHS out of it. !!!!!!!!!! ( Prof Walker)
discarded any hint of my Painkillers, my citalopram (depression) , my fatty liver (non-alcholic) affecting it .
The conversation was pleasant though, not patronising but he wouldn't shift no matter what I said.
He thinks it's possible because all my thyroid tests are " normal " then I may have another form of auto-immune or a rheumotolgy problem..
I know what I am feeling, and this has all started since I lost weight (3st) and they worried my levels were high, although they were NEVER out of range. (work that one out Prof Walker ). and reduced my thyroxine twice. Now I have gained over 10lb even though still on the same diet.
Sorry for rant but feel so desperate, thinking of just starting a small dose of t3 and seeing how I go.
Help please xxxx