HI this is along rant so i am sorry if i go on a bit.
I am boiling mad after years of feeling like death you all know what that feels' like being given every tablet under the sun along with thyroxine, anti depressants' pain killers' for fibromyalgia and other shite of crap doctors' going back and forward to see a endo and paying for t3 myself, i after much pleading got the endo i was seeing in mancheaster [nhs] hospital to prescribe t3 in may of this year i was taking,
5mcg of t3 2in the morning 2 at late dinner time and 1 round about tea time. [total 25 mcg]
i have not felt this god in a long long time, still get the odd bad days' but feel life worth living again.
on the 28th sept 2014 went along for my appointment with endo only to be told she had left and i was, going to be seeing another doctor who was male fair enough i thought boy was i wrong,
He never even asked how i was feeling just wanted to know what i was doing on t3 , i knew then i had a fight on my hands' explained the situation to him and how well i had been feeling since being on t3,
well he was having none of it, asked if i had had my bloods; done told him i had them done by gp 22nd sept, thats' when all hell broke loose my results' were
T3 6.9 ABOVE RANGE
T4 7.9 BELOW RANGE
AND SLIGHTLY SUPRESSED TSH AT 0.04
HE told me that i needed to come of t3 that i should never have been given it kept going on about findings in canada linking t3 to osteoporosis and cardiovascular risk and the long term harm full effects'
i told him i had been really unwell and had been in bed most days'
he said that it was just my age i told him he only wanted me off t3 because of the cost and that i had also read up on my illness oh he said doctor peatfeild he made alot of money out of people;
then came the battle i gave as good as i got. at the end he just said that when the green paper comes' out
about t3 no doctors' gps or other wise will be able to prescribe it i told him i will fight to stay on t3,
there is no way i am going back to how i was for over five years'
he has now sent my gp a lettter reducing my t3 to 5mcg 4 times' a day and increasing t4 to 75mg
He also wrote i will not suppress her tsh long term and would not support a regimen that did so.
I feel that if i had not fought my corner he would have taken me of it all together i came out of there shaking i have to see him in four months' time i dont' know if i could go through that again., and now my gp wants' to see me she never wanted me to have t3 in the first place , i keep waking up thinking what will i do if they take me of t3 any advice please should i change? endo.
He told me that there are a lot of endos' now who wont' prescribe t3 he really was a bully.
i really need your help.
Take care [sorry for the long post]