About 2 years ago i had all the nec private tests done with Genova, Red Apple, Doctors Data etc and was seeing a private endo. She advised me and prescribed me to start T3. I sadly lost my job therefore my healthcare at that point. Since then I have been battling with the NHS to get T3 on prescription on a "named patient basis". I also tested positive for the DIO2 gene(from both parents) . My GP wanted to prescribe T3, he wasn't allowed to. He referred me to Addenbrookes endo who wrote him a letter basically calling the private endo and T3 treatment controversial, also saying any labs would have to be done at Addenbrookes (a complete lie) and that he wouldnt take me on. I subsequently found out someone who was on T3 about 3 streets from me and gets her labs done in my town. The CCG finally caved in and said I could have T3 on prescription IF an NHS endo would get me stable on it and then i could continue it with my GP. My local endo said no, I then heard of another NHS doctor in Milton Keynes who prescribed T3 so my doctor referred me to him...UNFORTUNATELY mentioning that i had been declined by Addenbrookes (not sure why he did this). I got a letter from this Physician saying the British Thryoid Association is steering practitioners away from t3/t4 replacement and that seeing me would not contribute towards my care. I am gutted to say the least, i saw this as a real light at the end of the tunnel. On top of that my GP who has fought so valiantly for me, often prescribing me GF food as i am extremely hard up is leaving in 1 week. I am devastated and feel lost without him. He is willing to write back to Milton Keynes as a last chance saloon type thing and Im wondering if there is any ammunition, anything anyone thinks I could get him to write that may sway the MK doc to see me and prescribe T3. Thank you in advance.
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