I originally had graves and TED 4 years ago and was treated with block and replace, 1000 mg steroid intravenous and cyclosporine. I have been in remission until 2 months ago when antibodies were > than 500 TSH 7.44 T4 10, GP wanted to leave it for 3 months but I rang my endo and he immediately put me on 100 mcg of letho. requesting test after 6 weeks, just had results and TSH is 0.33 (0.35 -4.94) T4 15.8 (9 -19.1) but anti bodies are now at 819 [>5.6] this worries me as it is the antibodies that attack my eyes and I am really worried TED will come back. Should I just bypass GP as he say no action this is to be expected and ring my endo .
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