How can I get an increase in Levo if my NHS GP and private Endo won’t increase based on TSH 2.9?
Any thoughts? I’m feeling much better than pre Levo, but know instinctively I need more than 50mcg. Spent a fortune on visiting an Endo/ expensive blood tests, to be told I probably don’t need the Levo!! Didn’t think a top level of TSH at 5.8 could make me so ill and that they see people with it in the hundreds! There’s me getting debilitating symptoms on a wimpy 5.8.
I had abnormal TSH for a year, declining T4 and a private GP did TPO antibodies and said I was Hashimotos. My Endo then did Tg antibodies suggesting TPO was the wrong one and it came back normal so has said not Hashi.
Where to go from here? Should I go back to the original private GP? Could he prescribe? He’d suggested I refer to the Endo as he thought I’d have a better chance of getting a treatment plan to share with my NHS GP that would increase the Levo , despite being in normal range on TSH- he felt I’d be banging head against a brick wall at my NHS GP otherwise. But now Endo won’t prescribe and informed my GP that they don’t feel it’s necessary and may take me off it.
And if my NHS GP then decide to remove it from my prescription, what then?