A little help understanding my last bloods from one of you knowledgeable's, thanks here goes.

I first posted a few weeks ago after a hyperthyroid diagnosis early April. Free T4 then was over 100 Free T3 46.2 pool/L and TSH <0.05mU/L raised calcium 2.64 mmol / L

Bloods taken on 1st May were Free T4 54.5 pmol/L Free T3 15.8 pmol/L TSH 0.03mu/L

Also mentions calcium level may need further investigation with a PTH and 25 vitamin D level ? Really appreciate any unravelling and advice on best long term treatment

Many thanks

[Clutter]

Carbimazole has reduced your elevated FT4 and FT3 but there's a way to go yet. Once you're stable for 6/18 months you'll be taken off Carb. You will be considered to be in remission if you don't go hyper for 12 months. If you do, it will be necessary to resume Carbimazole and perhaps consider thyroidectomy or RAI, although patients have been on Carb for 3 years or more. RAI is contraindicated for Graves as it can worsen Thyroid Eye Disease (TED).

A blood test for Thyroid Receptor antibodies (TRab) will determine whether or not Graves Disease, an autoimmune thyroid disease, is responsible for your hyperactive thyroid.

When your calcium and vitamin D are tested, ask for ferritin, B12 and folate to be tested too. Might as well make sure all of your essental vitamins are in good order.

[jimh111]

Your hyperthyroidism has improved a bit but there is a long way to go. Has your specialist given you an idea of how long it should take to settle down? What was their view of your latest thyroid levels.

I'm assuming your hyperthyroidism is caused by the thyroid gland going wrong (it can be due to the pituitary). There are four glands right next to the thyroid gland called parathyroid glands, these are nothing to do with the thyroid, they get the name because of their location. The parathyroid glands control mineral levels, especially calcium levels. They do this by secreting Parathyroid Hormone (PTH) and work along with vitamin D to regulate calcium levels. It may be that your calcium levels are out and this is why they want to look at PTH and vitamin D. The blood test for calcium is very reliable.

The disorder that affects your thyroid may be affecting the parathyroids. Calcium levels are important not only for the bones but also if they are out it can be associated with a number of symptoms and also cause mental distress. So if you are feeling awful it might be some comfort to know that many of the feelings are coming from your current thyroid and calcium status and will resolve. Nonetheless even with this awareness it's difficult to overcome any distress but it will pass.

For the present your condition should be managed by the specialist, don't be shy about asking questions, in particular how long it takes to resolve the thyroid and calcium problems.

[Hidden]

Hi , how you going on with your symptoms now? What dose of carb are you on? Have you seen your endo yet?

[Hidden]

Thanks for the advice, The explanations of blood results are just not discussed at any appointments, (they will be now) At least I'm going in the right direction but I have no idea how long these symptoms will be with me like this. On 20 mg carb twice daily p1pp1ns and now seen endo twice however the last appointment felt like a waste of time, just told me what I already knew and checked the usual bp etc. I asked him if there could be any correlation between thyroid dysfunction and gluten and he looked at me like I was from planet zog. I've come to the conclusion that taking the Meds and following your bodies instinct will yield the best results. ( well I hope so ) thanks for taking the time to reply