I am sorry you have been ill all this time. It must be a nightmare.
Despite your blood tests, you may still not be on the right medication to make you feel well. I, like a few others on this site, didn't begin to feel better till either T3 was introduced along with T4, or T3 alone. Some get better on NDT. This is a link from Thyroidscience. Dr Lowe was also the Director of Fibroymalgia Research Foundation.
If you have antibodies(Hashi's) then you have an auto immune condition. I also have Hashi's diagnosed 4 months ago. I have been hypo 7 years and felt very unwell last Nov. asked GP for TPO test. Local Endo said to increase my levo slightly, no other treatment. I am about to start Paleo diet, no gluten, no dairy to try and reduce my anti bodies and hopefully reduce my symptoms. When the anitbodies attack your thyroid your system can get flooded with thyroid hormone and therefore you can go hyper! My TSH was all over the place for 2 years in spite of only small changes to my levo dose! hope things improve for you.
Have u had yr adrenals checked via saliva test? Aso u need to be optimum fr ferritin,b12 and vit D. U also need yr FT4 and FT3 monitoring and if GP unable or unwilling to do I wd have them done privately. I was v sick fr over a yr as a result of too much nutri adrenal supplements which caused episodes of v high BP resulting in several emergency trips to A&E. It takes time fr yr body to recover. I would go slowly with the thyroxine and do not assume that yr body can deal with or need the dose u were on previously.
I was on 100mcg levo which was increased (who knows why) to 150. I went hyper and was very ill but didnt realise why for some time. Now back to 100 but still a long way from feeling well. Like you the lab left out the t3 so I have just had private bloods done and waiting for results. I'm wondering what damage can be done by overdosing for so long and whether it affects your tolerance for levo altogether.
In what way does one feel ill when hyper? I once was on 300 mcg thyroxine (briefly; my gynecologist, who was also my PCP, let me experiment with the dose), and I felt better then than I have any time except during my first pregnancy.
When I went very hyper I was very ill .I thought I was dying.Very anxious,extreme fatigue,jittery and shaky flushing ,could not talk to people ,no stamina ,off work for 6 months
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